Adjusting Gavin’s Clozapine has just traded one problem for another

Gavin seems to be doing okay today so far. He slept most of the morning but afterwards all he wanted to talk about were his missions. It seems that dropping down on the was a tradeoff. 

On one hand, he seems to doing a tiny bit better when it comes to bladder stuff, although he had a really hard time during his infusion yesterday. 

On the other hand, he’s back to talking about his missions, which seemed to have slowed down a bit on the increased dose. Frankly, this is really subjective because one day he can seem to do better and the next it’s worse than its ever been before.  

If anyone tells you that being an or parent is easy, ask them for some of whatever they’re smoking because they’re likely smoking something. 

My life is constantly a physical and emotional rollercoaster that I can’t seem to get off of. Sure, it’s a fun ride but sometimes you need to just climb out of the cart and step away from the madness. 



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  • It’s not easy!!think I’d like some of what they’re smoking aswell!(a lot of what ther smoking)��

  • Love it… �

  • I totally agree. I see some of these posts from people who say I love my child just the way he is and I wonder, is there something wrong with me? Or are these people lying through their teeth? Tell me if they came up with a cure for autism tomorrow you wouldn’t snatch it up so fast it would make their head spin? Does that make me a bad mom that I would want to give my child a normal life if I could? Yes I love my son, but if I could give him a normal life you better believe I would take it in a heartbeat.

  • Amen.

  • There are 2 components at work here. The first is the sheer physical WORK of taking care of children on the spectrum (especially who also have other disabilities which is quite common). The second is the emotional burden of raising children who will have big struggles all their lives. And I think you’ve shown how exhausting fighting the battle is every day.

    • Well said Becky…. ☺

    • Rob Gorski It’s easier for Jacob as he is HFA. At the same time, people don’t see or make allowances for his disability.

  • Well said Becky…. ☺

  • Rob Gorski It’s easier for Jacob as he is HFA. At the same time, people don’t see or make allowances for his disability.