I’m losing my son to Childhood Disintegrative Disorder

This was a very difficult video to record. I did my best to hold it together but talking about Childhood Disintegrative Disorder and how it’s impacted my oldest son, Gavin, is incredibly painful. CDD is a very rare and regressive form of Autism. A child will develop typically, hitting appropriate milestones and then one day, around the age of 4, everything changes.

You can read more about CDD here: https://en.wikipedia.org/wiki/Childhood_disintegrative_disorder


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Helma van de Vondevoort
Helma van de Vondevoort

Thanks for sharing your feelings with us. You are always trying to help others; i wish you and Lizze and the boys all the best!