Tag Archives: childhood disintegrative disorder

This morning was all about Gavin

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I spent the morning dealing with Gavin related appointments. He had an appointment with Dr. Reynolds and then needed to get his bloodwork done. We had about an hour long wait before we were finally seen by the good doctor. That wasn’t too bad of a wait and I wouldn’t… Read more »

It was a disastrous morning for Gavin

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It’s been a really rough morning. I’ve been fighting off a stomach bug for most of the week and it’s not been pleasant. I’ve actually not been eating much, so might be a great time to weigh myself.. Lol Anyway, Gavin did not have a good morning. His IVIG Infusion… Read more »

Gavin’s IVIG infusion is NOT going well

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Gavin’s IVIG infusion is not going well this morning. For some reason, we can’t get any flow and I’m having to force the solution through the tubing manually. It works but it’s very difficult and quite painful for a Gavin. I don’t know what’s wrong for sure, but it could… Read more »

Childhood Disintegrative Disorder is stealing our son from us

This post was started on Friday and has taken me this long to finish. It’s been a long weekend and I apologize for my absence. I was largely absent here today because I’m struggling a bit right now. I’m having a hard time coping with certain things at the moment,… Read more »

He’s 18 years old on the outside but not on the inside

Gavin’s having a rough time today. He’s eighteen years old now but can’t be treated or managed like a typical, freshly minted adult. Unfortunately, Gavin’s cognitive ability is significantly lower than his chronological age. Until we have his new NeuroPsych testing done this summer, we won’t know exactly how much… Read more »

Why it’s important for special needs parents to find something positive in each day

When you’re a special needs parent, it’s quite common to feel overwhelmed. If you did a keyword search in this blog, you’d find countless times I’ve used the word overwhelmed to describe how I’m feeling. Being overwhelmed isn’t something that’s easy to deal with because of its very nature. When… Read more »

Do you ever feel like life has just kicked your ass?

It’s been a long weekend and it’s still not over yet cause there’s no school today. There’s not been anything catastrophic that’s happened in the last few days but I feel like I had my ass kicked up one side of the road and down the other. Truthfully, Lizze and… Read more »

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