Do you know what it’s like to be trapped in a car for 3 hours with a kid having a massive meltdown?

Emmett ended up having to go with us to Elliott and Gavin's doctors appointment.  The appointment itself went well and the boys checked out fine. Although, one thing to note is that Elliott's heart rate is very elevated and we aren't sure why. It's most likely tied to how anxious he was about the appointment but I have to keep an eye on him. Like I said, the appointment was a breeze but the car ride up and back was a total bitch.     Emmett melted down for about 75% of the trip home. Elliott freaked out and Gavin did his potty dance for most of the way up.m It was like someone flipped a switch with Emmett and set him off because their was no consoling him. Maybe he…

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Off to physical therapy at @AkronChildrens

Emmett, Elliott and I are going to be on our way to physical therapy at Akron Children's Hospital. Emmett gets 45 minutes of therapy a week and it really is a positive thing.  It sucks that I have to pull him out of school early but the benefits far outweigh the price of admission.  I anticipate a really positive session with his amazing PT. 😀   

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Do you have any idea how today has gone?

Its been one of those days that has dragged on forever. I've pretty much been nonstop since 7:00am this morning.  On the plus side, I got a great many things accomplished.     Gavin's IVIG infusion is just about done (at the time of writing 8:30pm), so he will be off to bed shortly. That marks the end of my parenting stuff for the night. Sure, there's still a million things I need to do still but I'm exhausted and need to be ready for two IEP meetings in the morning.  😱 Anyway, Emmett's eyes checked out good and his new glasses will be ready in about a week. He will now have two backup pairs and I feel really good about that because I really like redundancy.  Elliott had a…

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Emmett kicked butt at his eye appointment today

Emmett and I just got back into town, picked up Gavin and will be getting Elliott from school in a few minutes. Emmett's eye exam went great and he only needed a mild adjustment to his prescription. The doctor said his glasses will essentially remain unchanged. Something that's a little different this time is that Emmett wanted transition lenses because of his sensitivity to light. Unfortunately, those aren't covered by insurance and I had to pay for them out of pocket but he's so excited about them that I'm not even worried about the unexpected expense.  Insurance covered a cheap pair of glasses that he can use as a backup pair and his transition ones will be his daily drivers..  I never really new how much the light really bothered…

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It wouldn’t be a Monday without a massive meltdown

Emmett's not in a good mood this morning. He can get comfortable with his shoes and most of his words towards me have been in the form is screams.  Elliott's been very helpful this morning but Gavin's just sorta lost and floating through the house.  It's going to be a very long day.       

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OMG it’s going to be crazy busy today

Today is going to start the week off with a bang. There is so much going on today and unfortunately, not all of it's local. Everything has to run flawlessly in the morning in order for this all to happen but I bet we could weather a few little bumps along the way, just nothing major.  I have to get Elliott to school in the morning and head directly to my parents house.  No, I'm not meeting anyone to walk the track. I wish though... 😩    Gavin will be staying with my Mom while I take Emmett and hightail it to Akron Children's Hospital. It's not for anything serious. He needs new glasses and this just his yearly checkup.  I'd happily take Gavin along but I won't have time…

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So this happened on Friday morning :(

Here's what I found while I was racing to get the boys to school Friday morning. 😫   I changed out the tire, got the kids to school on time-ish and still made it to walk the track. I was 7 minutes late arriving to the track but I still went.  My Dad and I plugged the tire this morning, making Emmett and I good to go for our trip to Akron Children's Hospital in the morning.  😀

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This is why I’m so worried about my kids

I'm very much overwhelmed by the boys at this point.  I love them completely and will never give up but I'm absolutely overwhelmed.  Earlier in the week I shared a post about how Dr. Pattie and I are concerned about the boys (Elliott and Emmett) and the emotional challenges they seem to be facing.   No one is labeling them with anything but their behavior is very concerning.      Elliott overreacts to everything and it's usually because he misinterprets what he hears. His perception can be skewed and he reacts based on what he thinks or feels is going on around him.  He gets so bent out of shape over simple words and is frequently screaming I hate being me. It's so heartbreaking. 💔 Emmett is beginning to do…

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