Jun 05 2017
As the morning goes on, it’s become very clear that Emmett is in a new fever cycle. He’s a little tyrant today, and isn’t super pleasant to be around. This, taken with all the other symptoms he’s presenting with, makes it very clear this is a fever cycle. Unfortunately, he’s supposed to be at the …
May 20 2017
We received a call from Lizze’s Mom because Emmett was complaining of a sore throat. I think he was possibly looking to come home, but they were able to redirect him and he decided to stay, from what I understand. For the last few days, I’ve been monitoring his temperature. I have a bad feeling, …
May 06 2017
I just woke up from a four hour nap. I feel a bit better but I’m far from being back in my feet. This week has taken so much out of me, but it’s also been an unusual week and on that hopefully won’t be repeated anytime soon. The fever disorder that Emmett struggles with …
May 06 2017
Emmett is in such a foul mood today. His fever is back up to almost 102°F and he’s a nightmare to deal with this morning. Lizze and I are completely spent. We’re so far beyond running on fumes, I don’t know how to put this into words. All I want to do is go to …
May 06 2017
We’ve made it to the end of the week, and what a week it’s been. This week has brought with it a few firsts, and they have proven to be very challenging. Emmett began and is still inside of his worst fever cycle ever. We’re at the seven day mark and he’s still running enough …
May 04 2017
This fever flare has officially cost Emmett an entire week of school. Not only has it cost him the week of school but it continues to have a vice like grip on his body. He’s not currently running a high grade fever, it’s still a fever at around 101°F on average. We’ve taken to describing …
May 04 2017
It’s been another exhaustive day in the house of freakishly rare, and frustrating medical conditions. Emmett wasn’t at school again because of a fever. He’s now been out of school since last Thursday, and while this is outside of anyone’s control, it makes me uncomfortable. The school is very understanding and we do t have …
May 02 2017
Wow! Today has been one of those days where I gave it my all, and spent myself into a hole. I’m feeling really stressed out, overwhelmed, and worried. There’s a lot to discuss but for right now, I’m going to focus in Emmett. We learned something today that has me very, very concerned. This is …
