As of this moment in time, Elliott is fever free. I’m not sure if he’s actually sick or not because he seems to run fevers (usually low grade but higher than Emmett) and not show any symptoms. This is where my sleep deprivation comes into play because it’s never really occurred to me that Elliott …
Category: PFAPA
Jul 30 2017
He just breaks down in tears
Emmett is very unpleasant today. He’s freaking out over every single thing that doesn’t go right. Any tiny imperfection is leading to a massive meltdown. He’s still running a low grade fever, and is about waist deep inside of a fever flare. Emmett is a difficult kid on a good day, but he’s never like …
Jul 27 2017
Why lunch was a sensory nightmare
Emmett’s still in the opening stretch of his current fever cycle, and he’s incredibly difficult to manage as a result. I’ve mentioned before that when he’s in a fever flare, many of his Autism related challenges are exacerbated. Typically, the biggest challenge during the period of time the flare is active is sensory related. He …
Jul 26 2017
Heartbreaking: Emmett had a really rough night
I didn’t write much yesterday because it was a rather trying day. Whenever I don’t publish at least three or four posts a day, it’s a safe bet that things aren’t going so well. Yesterday was full of challenges related to Emmett’s fever disorder. He was in a horrible mood for most of the day …
Jul 25 2017
Living in #meltdown Hell
It’s safe to say that we are officially inside a fever cycle. If you look at the image below, you can see Emmett’s temperatures over the last couple of weeks. We crossed over the 100°F threshold, that is typical of a fever flare. If that wasn’t evidence enough, his demeanor has been a kick in …
Jul 20 2017
I know he’s miserable
Emmett is very clearly in a fever flare. He’s in a horrible place, and seems to have lost his ability to talk without screaming. He’s been screaming all morning. I know he’s miserable, and I don’t blame him for any of this but it’s not easy to maintain the mindset, when there’s so much screaming. …
Jul 16 2017
An unbelievably difficult afternoon
It’s been a mixed bag this afternoon. Everyone is glad Mommy is home, but it’s also been a long weekend. Elliott’s doing well, but Emmett is really struggling. I’m fairly certain that Emmett is entering into a fever cycle. I’ve been tracking his temperature over the last few days and it’s been mostly 99°F or …
Jun 19 2017
All signs point to a fever cycle
After a long night, Elliott appears to be feeling much better. Emmett on the other hand, is still not feeling well. He’s got a large mouth sore, and is running a minor fever. All signs point to a fever cycle. Emmett is not in the best mood, and I can’t exactly blame him. I’m hoping …