May 23 2018
We had to make our way to the Cleveland Clinic yesterday for a Pediatric Neurology appointment. Gavin had a follow-up in regards to epilepsy and autonomic dysfunction. I already shared the results of his Orthostatic testing but you can find those here. Overall, his appointment went really well. We talked about our concerns in regards …
May 23 2018
I have a much larger update planned but for the moment, I wanted to let you know how Gavin’s orthostatic testing went at the Cleveland Clinic yesterday. Whenever Gavin see his neurologist at the Cleveland Clinic, they have to do orthostatic testing because he has autonomic dysfunction.. Orthostatic testing is simply taking his vitals but …
May 22 2018
Gavin has an epilepsy follow-up in Pediatric Neurology at the Cleveland Clinic this afternoon. We’ll be leaving shortly and I’m hoping that everything goes well. Today’s appointment serves as both a follow-up and a consultation. Gavin is supposed to have an endoscopy and colonoscopy on June 5th. We’re worried about how his autonomic dysfunction may …
May 11 2018
This is take two for this post cause the first one glitched out and disappeared. I’m gonna try to reproduce it as best I can. I played phone tag with Akron Children’s Hospital today. I called this morning to get the results of Gavin’s labs from last week and it turns out, they never received …
