Category: Pediatric Neurology

I’m not in a good place tonight but here’s what happened with Gavin today

I’m not in a really good place tonight. It’s been an exceptionally long day and I’m not sure how to begin digesting today’s appointment. This will be brief and you can then check out a few pictures from today. Basically, we don’t know what’s going on with Gavin’s legs. Neurologically,… Read more »

My kids with #Autism don’t do well with change but as their parent, I sure as Hell better be able to adapt

I was already on edge about our trip to the Cleveland Clinic this morning but our plans took a sudden, unexpected turn a few hours ago. First of all, I’ve said this a million times but it’s worth saying once again. As an Autism parent, I have to be flexible…. Read more »

I’m really worried about Gavin’s appointment at the @ClevelandClinic in the morning

I’m really nervous about Gavin’s neurology appointment at the Cleveland Clinic in the morning. To be completely honest, I’m sick to my stomach over it. I love Gavin’s doctor and I love the Cleveland Clinic. Without hesitation, I can say that they are a large part of the reason Gavin’s… Read more »

Here’s what happened at the @ClevelandClinic yesterday

We had to make our way to the Cleveland Clinic yesterday for a Pediatric Neurology appointment. Gavin had a follow-up in regards to epilepsy and autonomic dysfunction. I already shared the results of his Orthostatic testing but you can find those here. Overall, his appointment went really well. We talked… Read more »

Gavin’s orthostatic testing results from our @ClevelandClinic trip

I have a much larger update planned but for the moment, I wanted to let you know how Gavin’s orthostatic testing went at the Cleveland Clinic yesterday. Whenever Gavin see his neurologist at the Cleveland Clinic, they have to do orthostatic testing because he has autonomic dysfunction.. Orthostatic testing is… Read more »

We’re returning to Pediatric Neurology at the @ClevelandClinic today

Gavin has an epilepsy follow-up in Pediatric Neurology at the Cleveland Clinic this afternoon. We’ll be leaving shortly and I’m hoping that everything goes well. Today’s appointment serves as both a follow-up and a consultation. Gavin is supposed to have an endoscopy and colonoscopy on June 5th. We’re worried about… Read more »

Is Gavin losing his vision or is something else wrong?

We have a super long day ahead of us. It begins with early morning bloodwork and getting the kids ready to spend the day at my parents house. While the boys are at my parents house, the rest of us will spending the day at the Cleveland Clinic. Gavin has… Read more »