Apr 05 2019
The boys got off to school okay. Emmett had another rough start, but he got through it. Lizze and I are left a bit frazzled, but he was feeling better when he walked into the school.😀 We have a day of driving ahead of us. Gavin has to be at the Cleveland Clinic for a …
Sep 04 2018
I’m not in a really good place tonight. It’s been an exceptionally long day and I’m not sure how to begin digesting today’s appointment. This will be brief and you can then check out a few pictures from today. [foogallery id=”82317″] Basically, we don’t know what’s going on with Gavin’s legs. Neurologically, he checked out, …
Sep 03 2018
I was already on edge about our trip to the Cleveland Clinic this morning but our plans took a sudden, unexpected turn a few hours ago. First of all, I’ve said this a million times but it’s worth saying once again. As an Autism parent, I have to be flexible. My loved ones with Autism …
Sep 03 2018
I’m really nervous about Gavin’s neurology appointment at the Cleveland Clinic in the morning. To be completely honest, I’m sick to my stomach over it. I love Gavin’s doctor and I love the Cleveland Clinic. Without hesitation, I can say that they are a large part of the reason Gavin’s still with us today. That’s …
May 23 2018
We had to make our way to the Cleveland Clinic yesterday for a Pediatric Neurology appointment. Gavin had a follow-up in regards to epilepsy and autonomic dysfunction. I already shared the results of his Orthostatic testing but you can find those here. Overall, his appointment went really well. We talked about our concerns in regards …
May 23 2018
I have a much larger update planned but for the moment, I wanted to let you know how Gavin’s orthostatic testing went at the Cleveland Clinic yesterday. Whenever Gavin see his neurologist at the Cleveland Clinic, they have to do orthostatic testing because he has autonomic dysfunction.. Orthostatic testing is simply taking his vitals but …
May 22 2018
Gavin has an epilepsy follow-up in Pediatric Neurology at the Cleveland Clinic this afternoon. We’ll be leaving shortly and I’m hoping that everything goes well. Today’s appointment serves as both a follow-up and a consultation. Gavin is supposed to have an endoscopy and colonoscopy on June 5th. We’re worried about how his autonomic dysfunction may …
Jan 02 2018
We have a super long day ahead of us. It begins with early morning bloodwork and getting the kids ready to spend the day at my parents house. While the boys are at my parents house, the rest of us will spending the day at the Cleveland Clinic. Gavin has a long day of testing …
