Category Archives: Autonomic Disorder




Gavin was absolutely miserable tonight

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Tonight was not good to Gavin. Poor Gavin got sick after dinner and was absolutely miserable until he finally fell asleep. Shortly after eating dinner, he got what he describes as a really bad stomachache. Tums seem to have helped with that rather quickly but it was the headache that… Read more »




Sometimes it’s the little things

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This past week has been a rougher one for Mr. Gavin. For some reason, he’s been dealing with bouts of nausea. Some of these bouts have been worse than others but they seem to mostly happen at night. Thankfully though, the last couple of nights have been good for him…. Read more »




My heart breaks for Gavin tonight

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For the second night in a row, Gavin is going to bed sick to his stomach. I’m not sure what’s going on but it was so bad that he went to bed before 6:00 PM. I don’t think he’s actually sick sick but it might be autonomic in nature. These… Read more »




How Gavin’s appointment went and why I’m so overwhelmed

We were gone for most of the day and it was an exhausting day at that. I want to start by thanking my Mom for helping out with the boys yesterday. We truly appreciate it. There was a lot of construction on the way to Cleveland but the drive was… Read more »




New concerns with Gavin’s health have us worried

We’re heading into a rough weekend. I need to catch you up on a few things I didn’t get around to yesterday.  The most concerning issue at the moment is that Gavin wasn’t feeling well while at his Grandma’s house, and ended up vomiting. The question is whether or not… Read more »




Gavin’s had a really rough day

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Gavin’s had a tough day and probably not for the reasons you’re thinking. Behaviorally, Gavin’s been an angel for the most part and we couldn’t ask for more.  Unfortunately, the things that have been a problem today are more health related. Gavin’s had stomach aches, on and off all day… Read more »







We made it to the @ClevelandClinic safe and sound

Gavin and I arrived at the Cleveland Clinic safely and here’s what’s happening now




I had to make plans for a worst case scenario with Gavin tonight

“….. It’s easy to forget how fragile his health is because he’s been so stable this past year and a half but complacency is not something I can afford to have in this type of situation…..”




A couple of general medical updates

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Here’s part two of the general updates. This one focuses on medication related things.

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