Tag: childhood disintegrative disorder



This is going to be a tough week

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It’s going to be a chaotic week. On Tuesday Gavin sees his psychiatrist for a follow-up with his Clozapine. Wednesday is calling hours for my grandmother, and Thursday is her funeral. I’m not looking forward to most of this, but it’s incredibly important that I not allow it to pull… Read more »



How do you help your child with #Autism navigate significant loss?

On Saturday morning, June 15th, my grandmother passed away at the age of 94. I’ve been really struggling with this loss for several reasons, but the loss isn’t supposed to be easy. It’s a part of life that we all will someday face, and it’s unavoidable. While this is a… Read more »



My head hurts, and my heart is broken

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I wanted to share a picture of one of my favorite moments over the last few months. The kids and I would stop by and have ice cream with my grandmother after school, almost every single day. She looked forward to it, and so did the kids. It was an… Read more »



I want to share some good news

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I’ve been living at my grandmother’s nursing home for the last couple of days. My brain is completely fried, and I’m exhausted beyond belief. While I was here yesterday, Lizze got word back from her neurologist about the results of her recent MRI that was done on her brain. Her… Read more »



There’s been too much loss in such a short amount of time

I’m spending the day once again with my grandmother and various members of my family, as they sort of come through to visit. It’s been a really long day, and I’m physically/emotionally exhausted. There’s not a great deal of religion in my life, and that’s by design. That being said,… Read more »



I’m grateful but heartbroken

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I spent the last 12 or 13 hours with my grandmother. I got home a little bit ago because the kids were getting freaked out that I was gone for so long. I’m going to try and grab a few hours of sleep before heading back. My Dad and uncle… Read more »



Things are rough right now, but life keeps moving forward

I slept pretty good last night, but I had weird dreams. It’s been a stressful week in a number of ways, and I’ve not really processed much of it. Some of the week’s events have been hugely positive, like Lizze not needing surgery and Gavin making it through all his… Read more »