Tag: childhood disintegrative disorder



Phone calls from the school during the school day are never good

Just when I thought things were finally settling down and we could catch our breath from all the Gavin drama this morning, Lizze gets a phone call. Elliott is in the school office with a fever and needs to come home. I had to drop what I was doing to… Read more »



Gavin had a massive, massive meltdown this morning

Gavin slept in this morning which is weird in and of itself. He didn’t wake up until just before I got home from my morning walk. As I walked in the door, Gavin was working on getting his IVIG infusion ready, and it wasn’t going well. It’s been about an… Read more »



Longer needles are needed

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Gavin will be resuming his IVIG infusions this morning. He missed his infusion on Friday cause his supplies didn’t arrive until late and then he ended up in the hospital. We opted to hold off until today because he was in bad shape and when he was getting back on… Read more »



The weekend sucked, but I’m feeling pretty good

After a long, physically and emotionally draining weekend, I’m feeling like we ended up being very lucky. Gavin’s emergency was dire and very scary. It’s impossible to explain what it felt like in those moments leading up to calling 911. Both Elliott and Emmett were affected by the experience. You… Read more »



I won’t be disappointed by a slower week

I slept like a baby last night. The level of exhaustion I was experiencing was beyond words, and I’m so grateful for the excellent night’s sleep. Lizze isn’t fairing as well because of her body’s reaction to extreme stress. It had been an incredibly stressful 24 hours, and she’s now… Read more »



My Son was Rushed to the Hospital: An Important Update

Alright folks, first of all, I want to thank everyone for all the thoughts and prayers over the last 24 hours. We were really scared and all truly appreciate it. Before I call it a night, I wanted to update everyone as too what happened. My brain is absolutely fried,… Read more »



Gavin’s in the hospital and here’s what happened

As I’m writing this, I’m sitting on the floor at the hospital, because Gavin was rushed here by ambulance tonight. We aren’t entirely sure what’s going on. He’s stable but in rough shape. We suspect it’s a reaction to his meds. I had actually recorded a pod this morning and… Read more »