Read more about the article He deserves to catch a break 
Gavin / My thoughts

He deserves to catch a break 

Gavin woke up this morning without a headache. That's always a positive thing because headaches suck.  He has enough going on in his young life, and deserves to catch a freaking break every once in awhile. It's heartbreaking to for any parent to see their kids suffer. I can't tell you how many times I've prayed to have his burdens placed upon my shoulders.  Unfortunately, those prayers have been left unanswered. Instead, I will watch him continue to deteriorate before my eyes, because that's all I'm able to do. 

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June 20, 2017
Read more about the article We’re going to have to get this checked out
My thoughts

We’re going to have to get this checked out

Our evening slowed down nicely, as our day was coming to an end. The boys were in a pretty good place, and bedtime wasn't a huge problem.  Lizze was feeling better after a nap, and continued reading The Three Musketeers to Elliott and Emmett. This is how they fall asleep every night, and it works well. Once they were asleep, they stayed asleep. ☺  Gavin went to bed complaining of a headache again. This is becoming a nightly occurrence, and I've no clue what's causing it. It seems to only happen at bedtime, and he gets so upset because he wants to go to sleep but he can't.  We're going to need to get this checked out when he sees his neurologists in the coming weeks.  Lizze and I watched…

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June 20, 2017
Read more about the article I have a friendly challenge for anyone who voted for @realDonaldTrump 
Political

I have a friendly challenge for anyone who voted for @realDonaldTrump 

I don't often get political on the blog, but what's happening in our country is not good. As a special needs parent, I have grave concerns about where Healthcare is going, as should we all. We have the power to make change, but we have to educate ourselves, put opinions in the back burner and deal with the facts.  This is totally off topic but I'm frustrated, angry, and frankly scared of where Donald Trump is taking our country. As a special needs parent, I'm terrified of what the future holds for families like mine, as a result of a Trump presidency.  I've very vocal on Twitter and actively share my thoughts on the things that come out of his mouth. It's shameful that the person representing our country lacks…

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June 19, 2017
Read more about the article Our afternoon took an unexpected turn
Lizze / My thoughts

Our afternoon took an unexpected turn

Our afternoon took an unexpected detour. Lizze called from class, not feeling well. The boys and I ended up making the trek to rescue Lizze and bring her home so she can rest.  Maybe we have something going around.  Emmett was complaining of a tummy ache again this morning, but Elliott's feeling better. Hopefully this will pass quickly and we will get things back on track, asap.. ☺ 

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June 19, 2017
Read more about the article One way I’m keeping my kids with #Autism active 
Family Fun / My thoughts

One way I’m keeping my kids with #Autism active 

I'm trying to keep the boys as active as possible this summer. I want them to develop healthier habits, because it will be easier for them to maintain a healthier lifestyle as they get older.  Right now Gavin's receiving his IVIG infusion, and depending on how he's doing afterwards, we may meet up with my Mom at the track. Elliott wants to walk the track, but Emmett not so much. If Grandma is there, he will be more willing.  The only other obstacle would be weather related. It's supposed to storm on and off today.  I want to at least make a concerted effort to make this happen. If it doesn't, I'll use the treadmill. 

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June 19, 2017
Read more about the article Something to remember on this Monday
My thoughts / Parenting Advice

Something to remember on this Monday

I wanted to take a quick minute, and remind you of something important. Please remember that you are only human, and recognize your limits.  We all feel like we need to keep going and going, but give yourself a break.  Taking a break can help to make you a better parent. ☺ 

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June 19, 2017
Read more about the article All signs point to a fever cycle
Emmett John / Fever Cycle / My thoughts / PFAPA

All signs point to a fever cycle

After a long night, Elliott appears to be feeling much better. Emmett on the other hand, is still not feeling well. He's got a large mouth sore, and is running a minor fever. All signs point to a fever cycle.  Emmett is not in the best mood, and I can't exactly blame him.  I'm hoping that he feels better as the day goes on. 

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June 19, 2017
Read more about the article A MAJOR change this week 
Lizze / My thoughts

A MAJOR change this week 

I'm getting ready to welcome week of change. This will mark the first full week of Lizze's new class.  She finished up her first of three consecutive intensive outpatient therapy (IOP) classes last week, and begins the second today.  This will be a significant change in schedule because she only has class twice a week now, and only in the afternoon.  She really likes this particular class because it's art based therapy, and that's right up her alley. Lizze loves everything about art, making this type of therapy, a perfect fit for her.  I'm so proud of her because I know this isn't easy, but these classes have such a positive impact on her, and subsequently on the rest of us. No matter how difficult these classes get, she doesn't…

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June 19, 2017