Apr 23 2018
It’s a little odd but Gavin has been chomping at the bit to get a new sharps container for the disposal of his IVIG infusion supplies. I say it’s odd because he’s been really focused on it. On Friday, I made arrangements for a new sharps container to be delivered today and the old one …
Mar 26 2018
I’m having a harder time coping with Gavin lately. God forgive me but he’s driving me fucking crazy and I simply don’t have the patience he deserves to receive from me. It’s important to understand that Gavin’s isn’t necessarily doing anything wrong. He’s just being Gavin. The emotions I’m experiencing in regards to coping is …
Feb 26 2018
Gavin’s IVIG infusion is not going well this morning. For some reason, we can’t get any flow and I’m having to force the solution through the tubing manually. It works but it’s very difficult and quite painful for a Gavin. I don’t know what’s wrong for sure, but it could be scar tissue. All I …
Jan 29 2018
Gavin’s bloodwork is done for the week and I’ll follow up with the pharmacy this afternoon. I need to remind them to have his medication delivered by Wednesday evening. There’s plenty of time for them to get the results and gain approval in order to release another seven days worth of pills. Next up for …
Jan 23 2017
I mentioned in an earlier post that Gavin has some problems with his IVIG infusion this morning. It was actually more of a problem during his infusion and not really with the infusion itself. Normally, he sits in the same place on the same couch and plays the same game on the Xbox or his …
