Fun fact, I'm getting interviewed this morning by Susan Wheeler-Hall BSW, NGH. Susan is an Author, Coach, Educator, Speaker and Radio Host. She'll be interviewing me around 11 am this morning. I'm not sure what we'll be talking about but it should be fun. The boys are home from school today and I'm hoping they will cooperate.. ☺
Unfortunately, Gavin's had a rough day. I feel I need to stress that this wasn't behavioral, at least in the way it would have been a few years back. The first issue is in regards to Gavin's bladder problems returning today for the first time in a long-ish time. This is par for the course with Gavin because these things pop up now and again. The first thing we will do to address this is work with the Miralax again. We had backed off a bit because everything was going well. That's all we can do at this point. As for the second issue or challenge, I think that was probably harder for me than it was for him. The problem was that Gavin required a great deal of patience…
After a night without sleep because Emmett kept having nightmares, I began my day way earlier than an human being should. When Lizze woke up about 8 am, I was sent to bed and slept about four hours. While I feel better, I'm still exhausted overall. Thankfully, there are no plans today that will require me to drive because I'm too tired to do that. I will say that I'm in a really good mood. Sure, I'm tired but aside from that, I have no complaints. ☺
Depression has been a constant companion of mine since I was a teenager. I've spoken very openly about this war I'm waging, and I'm going to try and provide you with some further insight. I've always referred to my struggles with Depression as a war because depression is a life long struggle, consisting of many battles. Some battles will be won, and others lost, just like any other war. It's important for me to share these battles because there's such a lack of understanding in regards to mental illness in general but more specifically, Depression. My hope is that my story will inspire others to share theirs as well. I've fought many battles against Depression over the years. There are times I feel like I'm gaining ground and others where I feel…
I've been putting off a really important update recently because I'm still processing some of it, at least I'm trying to. During our last meeting (this past Tuesday) with Dr. Pattie, Gavin did another mission debriefing. This debriefing was a little different because we learned something new about the status of his current psychosis. After talking about all the adventures he had gone on since the last debriefing, I began asking him questions about what he was saying, in an attempt gain a bit more insight. These questions led to a much better understanding of where he currently resides, psychologically and emotionally. It turns out that Gavin's hallucinations are actually getting worse. There used to be a portal he had to walk through in order to be transferred from his…
I wanted to take a minute and share a bit of insight into what Gavin experiences in regards to his IVIG Infusions. Gavin receives these medically necessary procedures twice a week and will do so for the rest of his life. These infusions provide him with the immune system his body naturally lacks. Without these infusions, his body would not be able to fight off infections. While these treatments are a blessing, they aren't always pleasant. The pictures below show what the infusion sites look like and it's incredibly unpleasant for him. Gavin has almost no body fat and so all the swelling is from the infusion
We had to get both Gavin and Lizze's bloodwork done this morning. Everyone cooperated pretty well and I'm grateful for that. We also had to stop by the UPS Store on the way home. Elliott and Emmett were distracted by Pokémon Go during the hour or so we were gone. They actually had fun, which made everything much easier. Everyone is in a good mood this morning, at least for the most part. I'm hoping that good mood will continue when we get home because I have some small projects I'd like to work on today.
The boys had a great day at school today. That's not a huge surprise, but I never assume anything. I appreciate this ending to the week because we are heading into four day weekend and it's always a good thing to start those out on the right foot. Apparently, tomorrow is a teacher in-service day and then, of course; Monday is MLK Day. I'm super proud of the boys for giving the week their all and walking away with a smile. We don't have any plans for this weekend, but the boys are going to spend the night with their grandparents tomorrow night. That means we get a break. :-)