Plan for the worst and hope for the best

Our three day weekend has officially turned into what will soon be a four day weekend. Both boys still have fevers and Emmett has a very upset stomach as well. 

I checked Gavin, just to be safe and he’s teetering on the edge of a low grade fever himself, although he says he feels fine. 

Lizze has had …



General Update: The Good News and The Bad News

I’ve been spread pretty thin this week and I haven’t written much at all. I’m trying to refocus a bit and get back into the habit but frankly, it seems overwhelming sometimes. I’ll do my best to get back on track. 

There are a few things that I’d like to update you on. 

First and foremost, Elliott finally …



UPDATE: We met with Elliott’s pediatrician and it didn’t go as planned

Last Thursday, we took Elliott to the pediatrician because she’s taking over his ADHD management. We were also there to discuss Elliott’s headaches and maybe get a referral to a specialist. 

The ADHD part of the appointment went really well. There’s not a great deal to managing ADHD aside from the medication and follow ups every three months. …



Major Update on Gavin’s missing medications

Throughout the day, I had about half a dozen different conversations in regards to Gavin not receiving his IVIG medications and supplies. I spoke with his doctor, his insurance case manager and the head pharmacist at the pharmacy we want to switch to for his supplies. 

Let’s get this out of the way first. 

Gavin’s doctor’s office was finally …



Very Important Update About Gavin

It’s been a trying day but I’ve learned one thing that I believe I can say with absolute confidence, Gavin off of Lithium is NOT a good thing. 

I’m sure Lizze will put her two cents in at some point but having discussed this last night, I know she agrees.

I suppose I should clarify that Gavin hasn’t stopped taking …



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