At least the pain doesn’t last long

Gavin's having a pretty decent day thus far. After taking the kids to school, I took him to get his weekly bloodwork done. Once again, he did great in that regard and now we wait for the results. Unfortunately, while he was walking out of the lab, both his hips popped and he was in a lot of pain. Gavin's joints are known to quite frequently pop out of place. That's not much we can do about that because it's a genetic thing. He did physical therapy for a long time and perhaps we need to revisit that again. He's doing fine now and the pain only lasts a short while. It sucks that it's present at all but at least it doesn't last long.

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Crawling back into bed isn’t an option

I woke up feeling awful this morning. As time goes on, I seem to be doing a tiny bit better in regards to dealing with the withdrawal symptoms of being of Paxil. This morning however, I work up feeling like I was going to puke again. It's getting so old already. Crawling back into bed isn't an option today because the kids need to get to school and Gavin needs his weekly bloodwork done. I've been finding that if I push through the nausea, it starts to get better the more I move around. That sorta seems counter intuitive and I can't explain it outside of an endorphin thing. Either way, it's still a daily struggle and some days are worse than others. We all have our burdens to bare…

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Why ongoing therapy is important for my #Autism family

Lizze is having a rough day and is trying to get some rest. The boys and I are off meet with Dr. Pattie for Tuesday night therapy. I guess we're stopping at the Garden Center to walk around for a bit. Emmett and Elliott want to catch some Pokémon and I just want to get out of the house.. ☺ With all the complexity, stress and challenges that we face as an Autism family, regular therapy is something I feel is extremely important. Our phychologist has known us since before the boys were born and has been working with Gavin for close to fifteen years. These sessions help me as a parent, have someone to bounce ideas off of and seek guidance from, especially when my wife and I are…

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I mention Gavin was struggling today and here’s what I’m seeing

This post was meant for yesterday but didn't get published until now. The morning didn't go as originally planned and perhaps that threw Gavin off a bit. He was definitely off this morning and it presented some frustrating situations for me. For starters, he was freaking out over his IVIG infusion. Gavin was worried about the needles leaking before he even began the procedure. This isn't uncommon for him to worry about, and I can't blame him for worrying, but the degree to which he was worried, interfered with getting his infusion going this morning. Gavin was doing some serious pacing and when he'd stop, he would lean side to side, sorta rocking back and forth. He was seriously stressed. It's sometimes hard to out my finger on what exactly…

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I have an unplanned trip to Probate Court

We have to straighten a few things with Social Security in regards to Gavin turning eighteen and transitioning to permanent disability. One of those things requires his adoption decree which for the life of me, I cannot find. It used to be in the safe but it must have been pulled at some point and not returned. SSA called this morning and let me know we needed this ASAP. For some reason, Gavin's name is still Gavin Weaver in their records and we've no idea why. It's an easy fix but it requires paperwork we can't find. We called Probate Court and I have to write a letter, explaining why I need it. They will give the letter to the judge for approval. If she approves the request, I'll pay…

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I fear Gavin’s becoming a bit more paranoid

Lizze and I had a pretty good morning. None of the little missions we went on panned out due to bad information but it was nice to try. We ended up just walking the track. Gavin will be coming home soon because he's apparently getting anxious/freaking out because he needs his infusion and can't do it at grandma's house. I don't know why he's so worried. He's doing perfectly fine as far as time is considered. Even if he did it tomorrow he'd be fine. He's sorta becoming more paranoid. At the same time, despite our many attempts to explain how this works to him, I know he doesn't understand. That may be to blame as well. I don't want him worrying about this stuff to the point he begins…

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Still struggling but forcing myself to exercise

Lizze and I have a few hours to ourselves this morning and that almost never happens. Gavin spent the night at his grandparents and the boys are at school. What I want more than anything is to crawl back into bed and sleep off the nausea but that's not in the agenda. Lizze and I are going to go walking shortly. I want to go. I need to go but I feel like shit still. At the same time, I know that I'll feel better as I walk and that's why I'm forcing myself to go. I'm losing weight and getting back into reaching my fitness goals. It's unfortunate that I'm having such a difficult time withdrawaling from Paxil but the more active I am, the better I feel. So,…

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Making changes to keep Gavin from hurting himself at night

We've been having some issues with Gavin, particularly at night. The other day, Gavin got up about 9 PM to use the bathroom. Lizze was still reading to the kids and I was in the living room. All of a sudden, we heard a really loud thud. I thought Emmett had fallen off the top bunk but Lizze headed right to the bathroom cause she knew it was Gavin. Gavin swears up and down that he never fell. He claims he only put his hands on the floor to keep himself from falling. Everyone in the house head the thud and no one believes it was from him gently putting his hands on the ground. The problem is that for some reason, his bedtime medication is making him very sedated…

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