Read more about the article More organized and efficient
My thoughts

More organized and efficient

Lizze and I spent a large part of the morning, organizing Gavin's IVIG supplies. There are so many supplies we've accumulated over the years. Wenneeded to get them organized and inventoried in order to have a better awareness of what we have. There were a ton of smaller supplies, like alcohol preps, obsites and needles.. We received a delivery of new supplies today and I organized all the new equipment into what is needed for each individual infusion. They're like little infusion kits, ready to go each Monday and Friday. It may not seem like a big deal but it took forever and it helps to keep everything better organized and efficient.

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September 2, 2017
Read more about the article It’s stressful but exciting
My thoughts

It’s stressful but exciting

We're aiming for a quiet day, after a long and emotional week. The only thing on the agenda aside from housework is possibly visiting Lizze's Dad at the hospital. We aren't sure if that will be a possibility or not, it depends on how he's doing when they finally wake him up. Assuming we can get someone to watch the boys, we like to spend some time at the hospital. As far as the house goes, we have to begin getting ready for our trip. I need to get Vivint out here to install the new panel and make sure everything's up to parent before we leave. I need to figure out something for the ferrets because they can't spend the entire time we're gone in their cage. They also…

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September 2, 2017
Read more about the article Gavin is OFFICIALLY getting his wish granted
Gallery / Gavin / My thoughts

Gavin is OFFICIALLY getting his wish granted

I received news tonight that we will officially be on our way to Florida at the end of the month. We've known for a little while that Gavin's wish was going to be granted, but we didn't know when we would be going for sure. People come from all over the world to stay at Give Kids the World. There were only a few slots open and we weren't sure we would be able to get in. We are now officially registered and our spot is reserved for us at the end of September.   The one big hang up that came up at the last minute had to do with transportation. They were going to rent us a car for the drive but we realized that we had to…

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September 2, 2017
Read more about the article A major update about everything
Gavin / My thoughts

A major update about everything

It's already been a long day and an extra long week. Gavin and I just got home from grocery shopping today and we actually did pretty good. We ended up about six dollars under budget, and that's always a good thing. Gavin did pretty good as well. He did have a few episodes though but he's okay now. By episodes I'm referring things like vision problems and he popped both shoulders carrying a bag of ice. He seems to be doing fine now, and I'm grateful for that. Elliott's in a pre-teen kinda mood and it's frankly, a lot bit unpleasant. Emmett's doing okay but doesn't have a high tolerance for anything today. This means that he's very easily pushed over the edge. Needless to say, there's a lot of…

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September 1, 2017
Read more about the article The house burned down
My thoughts

The house burned down

Our day hasn't gone as planned and for the most unusual reason. We woke up this morning to find the house across the street burning. It's been abandoned for awhile so no one was hurt. It's very likely to be arson, as there has been abandoned houses being torched around the city. We weren't even able to get the boys to school because we were surrounded by charged, four-inch lines. Both ends of the street were blocked off by trucks and ambulances. This all began around 3 AM this morning, and twelve hours later, they're now tearing the house down. We are finally about to drive down the street again. On a plus side, that house has brought nothing but trouble. It won't be missed in the slightest. I'm just…

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September 1, 2017
Read more about the article This might be bad news, I’m not sure yet
Gavin / My thoughts

This might be bad news, I’m not sure yet

Gavin spent the day with my Mom yesterday. Apparently, Gavin was experiencing some things that were concerning to him, and my Mom decided to sorta make a journal to keep track. It's entirely possible that these are unrelated to anything in particular. The list of his physical complaints included the following: Back pain Problems with his vision Leg pain (I think) There's more I believe but my brain is currently in overload and I can't remember the rest. It's really difficult to know what's what. These could all be random occurrences, and end up being nothing, or maybe they are signs of other things. None of what he was dealing with were new. Strictly speaking, these have all happened before. I'll get into more detail in the morning. For now,…

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September 1, 2017
Read more about the article Here’s an update
General Update / My thoughts

Here’s an update

It's been such a long day. The boys were picked up bright and early by my Mom, and Lizze and I were off to the hospital. Her Dad has been in surgery for most of the afternoon. We were sent home after awhile but everything seemed to be going well. Apparently after this type of surgery, they keep the patient completely sedated for at least twenty four hours after. I'm intentionally leaving this vague because Lizze will have a more detailed post when she's feeling up to it. Check here. Speaking of Lizze, she's having a bit of a rough time with all of this. She's not slept well but is currently sleeping right now. The boys are at dinner with my parents and will be home in a little…

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August 31, 2017
Read more about the article Gavin’s driving me crazy because apparently, I’m not stressed out enough already
Gavin / My thoughts

Gavin’s driving me crazy because apparently, I’m not stressed out enough already

I'm going to try and keep things on track and if you're looking for updates on Lizze's Dad, please check here. If Lizze isn't up to it, she may ask me to convey her thoughts. Having said that, while we haven't noticed any changes in Gavin's behavior yet, his typical behavior is overwhelming enough already. Gavin's truly the sweetest kid, and I couldn't be any prouder of him. At the same time, he's been driving me crazy (yes, I know that's a short trip). I love him dearly but he will not stop talking. He's in one of those places where I'm not sure he even realizes that he talking outloud. Lately, he's been verbalizing every thought that comes into his mind. There's some strange shit that goes through his…

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August 31, 2017