Gavin’s IVIG Infusions are changing today and here’s why

Tonight's posts will have to do with some changes that are coming. The  two changes that will be discussed, beginning with this post and ending in the follow up a few hours later, should bring about positive results.  In this post, I wanted to share a change that is being made to Gavin's biweekly IVIG infusions that should improve his experience.  Let's get everyone caught up.  For starters, why is Gavin on IVIG and what does it do? I'd have to look back for the exact date but roughly 4 years ago, it was discovered that for some unknown reason, Gavin's immune system had become permanently and severely compromised.  No one has any idea what happened or why but there it is.  As a side note, this happened about the…

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This was a pleasant diversion 

We had a pretty fun afternoon. The boys and I went to visit my parents for a little bit today. We were able to hang out and watch the Browns lose to the Raiders. 😕 It was just a nice little diversion for the day and a pleasant change of scenery for everyone.  I picked up pizza on the way home because that's all the boys will eat in their school lunches. Now we're just sorta chilling out and having a nice quiet evening at home. 😀 It's been a pretty awesome day...    

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Feeling hella motivated today

I woke up today and was dead tired because I was up with Emmett last night. He was super clingy last night and I didn't sleep well at all.  The boys let me sneak a short nap in before lunch and I'm feeling really good.  I'm taking on the laundry today as well as vacuuming everything that is vacuum-able. 👍 The reason this important is because I haven't felt motivated like this in a long time. I don't think that I'll question it but instead ride the motivated scooter as long as possible.  It feels really good to be making progress in my life.  As stupid as it may seem, I also feel like I'm improving the boys lives as well by tackling the house and making it a more…

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How’s Mr. Emmett doing this morning?

After a rough night with Emmett and not getting much sleep because he was super clingy, it's a brand new day.  The question is how's Emmett doing this morning? Thankfully, Emmett's having a great morning and doesn't appear to be in any pain or discomfort. I haven't directly asked him about his ear yet and that's mostly because my sleep deprived brain hasn't gotten there just yet.     You could see the stress and anxiety in Emmett eyes yesterday. He was completely overstimulated and I'm not sure why.  This morning however, it's like someone hit the reset button and he's been able to shake it all off and start over. He's seems pretty happy today and while I'm not going to push my luck, I do think I will try…

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I met with the school over my concern with Common Core math and I’m not sure what happened

As I try to bring everyone up to speed on the goings on with my family, I should briefly bring this up. I mentioned prior to this weekend that I was going to be meeting with Emmett's teacher over this Common Core math situation we have been struggling with.  Going into this meeting, I'm fully aware that the school isn't to blame for this but unfortunately for them, they are the messenger and I suppose that puts them on the front lines.     That being said, I went into the school prepared to stand my ground and demand that Emmett not be forced to learn this bizarre way of doing math. In many ways I did what I set out to do but I don't think I accomplished what I…

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I think poor Emmett might have an ear infection 

Without dwelling on the massively challenging evening we had, I suspect I know what was behind Emmett's irritability.  About 2 hours after I tucked him in for the night, he came down the steps and looked like he's was going to burst into tears. He climbed onto the couch with me and I noticed he was pulling at his ear.    I don't think he was fully awake because when I asked him if something was hurting him, he sorta mumbled yes and started fussing a bit before he feel back asleep on chest.  My guess is that he may have an ear infection.  I had been thinking that he was hitting a fever flare because he was having a really, really rough night and that typically means that a…

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Just a quick update

I'm really trying to keep up with my writing but it's not going so well. I've not been finding that motivation comes easy right now.  It's probably a lot to do with depression and maybe a little bit of feeling overwhelmed by life lately.     The reason writing is so important for me is because it helps me process my life and sorta maintain perspective.  Anymore, the idea of plunking down my thoughts and feelings just seems too hard.  I'm going to be really trying to get caught up on my writing because there's so much I have to say and it's just building up.  Here's to the free flow of my thoughts going forward.  😀

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The boys and I have been having a pretty great day :)

It's been a low key kinda day here in The Autism Dad household. Emmett was up pretty early but the boys let me sneak in a short nap, so it all worked out.  We've been working on a video game together recently and we spent some time digging into that before capping off the afternoon with a trip to the playground.  Everyone had fun and we only had a few Autism/anxiety issues along the way.  I would truly love to have more days like today. ❤️😀👍   

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