Today is winding down to a close. It has been a day. Gavin behaved for the most part but he is really struggling. He is literally walking into walls. We spoke with Dr. R for about an hour on the phone and basically we toss out what we were told this past week. They treated Gavin medically and not psychologically. We are avoiding anti-psychotic medications but we are treating the bipolar. Dr.R says this has no impact on the movement issues. He doesn't understand why we wouldn't treat the bipolar because clearly it's a problem and a major safety issue. So we start back in the morning on Lithium. That will help Gavin tremendously. Dr.R is one of the dew people we have learned to trust. There are only a…

Gavin has been home for 12 hrs and we are already having issues. Last night he saw a plane and told ER it was a UFO. Then he told ER about how alien abduction. So ER had nightmares again. Gavin is and will remain unmedicated because the risk involved in mediating him is now to great. The Cleveland Clinic said we have to wait at least 8 weeks before we can look at meds again. He is a mess and I mean it. He needed to come home because they were done with what they could do and we couldn't afford to be decided between here and there. It was almost $100 +/- per trip. Gavin was getting into the routine of getting what he wanted when he wanted it.…

EJ and I just got home from Cleveland. Gavin is being released tonight but we waited for 7 hours to talk to the doctors. Both of the kids were there and I needed to get EJ home cause he was having tummy issues and went through all the clothes we packed. ER refused to leave without Gavin so he stayed with Lizze. Gavin is unmedicated and will be returning that way. I called to check on them and Gavin as screaming because Lizze turn the violent cartoon off he had put on and changed the channel to something else. This is the first time he didn't get his way in the last week and he exploded and apparently began hurting himself. One thing that concerns me besides the medication issues…

We received a very welcomed call from the Cleveland Clinic a little while ago. It seems we may may be able to bring Gavin home early. They have ruled out all life threats and he is detoxed. However, he is completely unmedicated. That's not necessarily a bad thing though. We can see he is without for a bit and go back on when we need them and I'm sure we'll need to. We have to meet with them around 11am today to figure everything out. I think we'll some how manage as we always do. It will be nice to have everyone together again. As frustrating as he can be I really miss him (we all miss him). Nothing is set in stone yet but they think today is the…

We are all home. Gavin is still at the Cleveland Clinic. We get his MRI results in the morning. I really thing they are going to keep him for a while. The risk of sounding like a bad parent this isn't happening the way it was supposed to. Gavin was supposed to get help and we were supposed to get a much needed break. That is not what's happening. Gavin is 1.5 hours away and we have to keep driving back and forth. Lizze is not able to take her meds when she is going up there and that has a hugely negative impact on her. I end up staying with the other two kids and that is beyond exhausting. Everyone that has watched even one of them can't do…

Today has been bell already. We got a call about 6am this morning saying gavin is having mri this morning. gavin will need to be sedated in order to have his mri. One of us needs to be present so we scrambled to make arrangements. If we had known we would have been there last night. Lizze and her mom left for Cleveland this morning. Both ER and EJ are sick and my back is out. For some reason Sprint shut our phones off this morning. They don't know why it happened but it did. It took me forever to get that fixed. They were supposed to replace Lizzes blackberry but never shipped it out last week. So after 2 days of battling now we have 2 coming which will…

Okay. Thank you for all the thoughts and prayers. Gavin is currently at the Children's Hospital at the Cleveland Clinic. He has been there since Satuarday. He has been having a reaction to one of the medications he absolutely has to be on. This medication was causing ticks. They started in his face and on Saturday they had spread to his entire body. We called the doctor and he said he must be seen. That started the process and here we are. He had to be cut off cold turkey because his life was in danger.  I can't begin to tell you what it's like to see your son in that condition. He has lost control over his body and was falling off the bed. After 12 hours in the…