This is what real life is like for one #Autism family




I wanted to take a few minutes and talk about something that I will admit to being frustrated over.  Actually, frustrated probably isn’t the right word but it’s the closest I can come up with at the moment. 

When you read the words on this blog, you’re gaining insight into my life. Through me you’re gaining insight into the lives of my family as well. 

The purpose of sharing this is to help people understand what life is like for one Autism family.  My family.

The reality of the situation is that my family faces unique and very often, significant challenges on a daily basis.  A great many of these situations are of a nature that renders them extremely difficult (if not impossible) for many people to understand.  At the same time however, that same nature that makes our life very difficult for many to understand, makes my words instantly relatable to a great many others because they face very similar challenges in their own life. 

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It really is easy to sit back and judge or make assumptions based on what you read, especially without the personal experience to help put things into proper context. That’s perfectly understandable and I can’t fault anyone for not understanding because frankly, I don’t always understand either and it’s my life.

I guess the point I’m trying to make is this. 

When you visit The Autism Dad Blog, you are reading words that are describing the life my family is actually living.  You’re reading about the challenges, heartache and pain that my family is facing.  You’re also reading about the victories, progress and forward movement that we celebrate. 

It’s really important to remember that while this is something you can read about before returning to your own life, my family and I are actually living through all of this. 

I can assure you that as much as you may feel that you know better at times, there isn’t anyone in a better position to make the decisions that have to be made other than Lizze and I.

The very same principle carries over to any other family as well. 

It’s easy to make a decision or come up with an answer when there’s no sense of urgency.  When in the moment, we don’t have the benefit of hindsight or being able to take a timeout until we can come up with a better idea. 

This is real life and it’s not always pretty or pleasant. Sometimes it’s messy.  Sometimes it’ll make you smile and other times it will break your heart. 

By reading this blog, you are able to gain access to a family that is very much a work in progress.  You will at times be reading my thought processes as I’m trying to work though a problem or feel my frustration as I struggle with the challenges. 

At the end of the day, you don’t have to read any of this.  You don’t have to visit this site and read things that make you uncomfortable or otherwise upset you.  You can simply choose to do something else. 

That same thing can’t be said for myself or my family because this is our life and we have no choice but to experience it first hand, in all its unedited glory. 

It’s easy to judge or make assumptions when you don’t understand something. The point of this blog to help you understand by sharing, answering questions or providing insights that you wouldn’t otherwise have access to. 

All I ask is that if you don’t have anything nice to say, don’t say anything at all.  I’m always happy to help or answer your questions but please be respectful and remember that there’s a human being at the other end of your screen. 




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11 Comments on "This is what real life is like for one #Autism family"

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Braden
Member
I think you are selling yourself (or your readers) short that we can’t understand. You explain what’s happening in your life on a daily basis and sometimes people comment. You have also afforded us the opportunity to connect the dots by being able to go back and read your comments on the same topic in the past. Which gives some people the view from the outside looking in which allows some people to see things that someone too close to the situation can not. You don’t have to like the messenger, but you should try and hear the message. Sadly… Read more »
Rob Gorski
Member
Braden, Look, we’ll have to agree to disagree and that’s fine. I’m not selling my readers short because the vast majority get it. Theres also a few commentors who seem to always respond the same way. It seems like their mission is to trip me up or simply twist what I’m saying into something that is negative. It’s always the same handful of people and so yes, while I don’t feel I lash out, I don’t take crap as well as I used to. Reading back through all the comments on all the posts, it will be very obvious who… Read more »
Braden
Member

Some people are going to notice inconsistencies in your story and question you on it, I know I have. And I know you accused me of trolling and of not having kids.

I will readily admit that I don’t always have the best bed side manner, but that doesn’t mean I’m trying to ‘trip you up’. If something doesn’t make sense, I ask

Rob Gorski
Member

What people view as inconsistencies are examples of a dynamic, real life situation that is constantly changing.

The truth is, I don’t care what anyone has to say. It’s more about how they say that and the approach they take, that impacts how I react…

I appreciate your honesty and tactful approach… ☺

Zoe
Member
Changing dynamics, like he one where Lizzie can’t be unsupervised with the kids or she and Gavin could never live together again, to 11 days later where it’s a welcome home happy happy joy joy party? No on has to try and trip you up, all on needs to do is read back or have followed you for a bit. It’s not hard. And I looked back for the budgeting help stuff, it’s there, barely 3 months ago. I’m not mean, im not spiteful, and I’m not a troll. I just hate that you spout off about doing the best… Read more »
Rob Gorski
Member
Zoe, Your comments are no longer worth replying to. I wish you the best in life but you bring nothing but negativity here and your comments are filled with hostilities that are unwarranted and I’m far from the only one to take notice. There is a group of about 4 of you who do this all the time and I’m done. I have tens of thousands of readers each month and it’s always the same 4 people that take this approach. You may think what you want but you’re not right and you can’t possibly know more about my life… Read more »
Alyssa Rogers Williams
Member
As you know Rob I have rooted for you and the boys and knowing back story and all the blogs before this though the Universe handed you the best Get Out of Jail Free Card ever. You were Almost There. freedom from pain inflicted by a person that destroyed your family, it’s logical many, many readers just can’t understand or fathom it. Yes. It’s your life, but many of your musings were finally about positively going forth, on your iwe to better things. I’ve chipped in before with $ for the blog & had planned on making it a more… Read more »
Alyssa Rogers Williams
Member
Rob, I’m back for a brief respite from your blog after that announcement. It’s of course, your life and your business but even my husband just.couldbt believe your naïveté I will go read these comments you speak of that are so bad…….. I stopped reading because there was no Free Speech /commenting when you (I’m not being mean here, just correct) let someone who destroyed you and your kids, was banned from her kids without a supervisor present, back IN …… I would imagine animosity and ire exploded within your readership when you let that said woman banned from seeing… Read more »
Sophie Wegat
Member

Alyssa made some really good points that I suspect many of us have been thinking. Why did you delete them?

Rob Gorski
Member

I’ve responded to her comment privately and I removed the comments because while I know she means we’ll, it wasn’t something I wanted to boys to ever read.

I really just want to move forward.

You’re right. She made some good points and I have nothing but respect for Alyssa bit at the end of the day I don’t want the boys ever reading some of the things that were said.

I hope we can move forward.

Sophie Wegat
Member

Really? I can’t see anything that she said impacting negatively on the boys. She was incredibly respectful.

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