What Gavin said that just about made my head explode



My goal with this entry is to help provide insight into one particular kind of challenge faced by parents of kids with significant cognitive impairment. 

As someone with a background in emergency medicine, I find it particularly frustrating when I need to gather medically relevant information from Gavin. 

This is a very difficult situation because Gavin is significantly cognitively impaired and is unable to provide information about how he’s feeling or doing. 



Today was a perfect example of this and it was unbelievably frustrating for me. 

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About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  

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Rebecca Magliozzi
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My son forgets things after his autoimmune attacks. Like, major parts of what happened. It is so frustrating trying to get to the bottom of things.

Kelly Lyons Schaffer
Guest

My son constantly tells us things almost happened! Very frustrating! ” I fell and almost hurt my wrist ” I almost had to poop” my favorite ” I was almost hungry at school today “. Another great favorite of mine is him screaming at the top of his lungs for me to shut up,stop talking to me. Then yells why won’t you answer I’m talking to you! It’s fun parenting isn’t it!

Alison Rose Miller
Guest

I guess I see this a ton because it seems about normal for my kids. Although my kids can usually express how they feel they struggle when it comes to expressing worry or seperating thought and reality. Ive been struggling with teaching the difference in being depressed and being bored or having no positive interactions with peers. Seems my teen uses depression as a blanket for a generalization.
Its so tough.

Rebecca Magliozzi
Guest

My son forgets things after his autoimmune attacks. Like, major parts of what happened. It is so frustrating trying to get to the bottom of things.

Kelly Lyons Schaffer
Guest

My son constantly tells us things almost happened! Very frustrating! ” I fell and almost hurt my wrist ” I almost had to poop” my favorite ” I was almost hungry at school today “. Another great favorite of mine is him screaming at the top of his lungs for me to shut up,stop talking to me. Then yells why won’t you answer I’m talking to you! It’s fun parenting isn’t it!

Alison Rose Miller
Guest

I guess I see this a ton because it seems about normal for my kids. Although my kids can usually express how they feel they struggle when it comes to expressing worry or seperating thought and reality. Ive been struggling with teaching the difference in being depressed and being bored or having no positive interactions with peers. Seems my teen uses depression as a blanket for a generalization.
Its so tough.

Sonja L Andrus
Guest

I’ve totally been there. A range of sensations gets garbled, or stress and worry over something becomes “it almost happened, you know, but then it didn’t” — psychosomatic symptoms that never fully manifested. lol Hang in there!

Sonja L Andrus
Guest

I’ve totally been there. A range of sensations gets garbled, or stress and worry over something becomes “it almost happened, you know, but then it didn’t” — psychosomatic symptoms that never fully manifested. lol Hang in there!