My son is missing his critical medications for the month

A large part of my stress load today is the result of Gavin’s IVIG supplies never showing up. 

I was contacted on Friday by the supplier who said that Gavin’s shipment is delayed because they have been unable to get refills from the doctor. They were going to fix this yesterday but that never happened. 

I spoke with Gavin’s doctor today and they have never been contacted for a refill or it would have been done immediately. I believe them because we’ve never had a single issue with them in five or six years. 

The doctor’s office also stated that Gavin current script covers him through May of this year and he doesn’t even need a refill yet. 

They are currently working to resolve this and have checked in with me to let me know that we are currently waiting to hear back from the pharmacy as to why there’s a problem. 
In the meantime, I have calls into both Gavin’s insurance case manager, as well as our regular pharmacy because I want to change suppliers. We’ve had too many issues over the years with them and the unreliable nature isn’t in Gavin’s best interest. 

Even if they manage to get supplies out tomorrow, Gavin’s infusion is already two days late by then. 

That’s not a huge deal in and of itself but it’s unacceptable for this to happen for the reasons it’s happening. 

I’m really frustrated but I’m trying to not let that set the tone for the rest of my day. Gavin’s okay for now and I’m sure this will be resolved in short order but until it is, I’m going to be on edge. 

We’re not talking something like psych or ADHD meds. We’re talking GAMMAGARD and that’s used to replace Gavin’s nonexistent immune system. I don’t like it when any of his meds get screwed up but I absolutely hate when this happens to his IVIG medications. 

Hopefully, I’ll hear something from someone, sooner rather than later. 

Rob Gorski

Full time, work from home single Dad to my 3 amazing boys. Oh...and creator fo this blog. :-)
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kimmy gebhardt

Is it possible to go have today’s (yesterday’s) infusion done at the hospital where he used to go?


Is it possible to go have today’s (yesterday’s) infusion done at the hospital where he used to go?


No. The hospital does them via IV and that lasts a full month. It’s usually okay to miss one infusion because this is done in a way that the effects overlap. Even missing yesterday, he should still be protected until Friday’s infusion.

It’s the fact that he can’t ha e because they didn’t deliver the supplies that really burns me up..