Tag Archives: GAMMAGARD

Gavin’s NOT having a good day and it’s taking a toll on all of us

Holy shit! Gavin is not having a good day by any stretch of the imagination. He’s been on overload all morning long. It’s crystal clear that he’s extremely stressed out right now and actually in distress. Maybe it’s from a long day with his grandparents and not because they’ve done… Read more »

Gavin went to bed not feeling well and I’m worried

Gavin had a really stressful day yesterday. He did great with having to get more bloodwork done but it took a lot out of him. As the day went on, it was clear that he was at the end of his rope. The boys were being annoying, as little brothers… Read more »

It’s all about Gavin this morning

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Gavin’s bloodwork is done for the week and I’ll follow up with the pharmacy this afternoon. I need to remind them to have his medication delivered by Wednesday evening. There’s plenty of time for them to get the results and gain approval in order to release another seven days worth… Read more »

I’m back on track

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It’s been a quiet morning so far. The boys are resting, Lizze is doing research, Gavin’s getting ready for his Friday IVIG infusion and I’m working on a bunch of things. One of my main priorities today is making sure I meet my activity goals. I’m currently using the Fitbit… Read more »

Dry air makes it so hard for me to sleep

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I had a rough time sleeping last night. Majority of the problem was related to the air being so dry, it made me really stuffy and that always makes it hard for me to sleep. It’s like a fricking desert. Around 2 AM I ended up downstairs on the couch…. Read more »

As an #Autism parent, why don’t you get a break?

We’ve established that #Autism Parents aren’t getting the breaks they need. The next question is why. Why don’t you get the breaks you need?

Doing right by Gavin for his 18th birthday isn’t as easy as it sounds

Gavin will turn eighteen in a few days. To be honest, that’s a pretty big deal for a number of reasons. The most obvious is that he’s physically made it to eighteen and I say that because of his fragile health. He’s had some close calls over the years and… Read more »

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