Tag Archives: GAMMAGARD

The plan for today

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The plan for today is to work on the house for a little while before going to the park and enjoying the weather. Maybe we’ll go for hike in the woods. We haven’t done that is a while. The only problem with that Is that Emmett only wears crocs and… Read more »

There is no cure for what my oldest son has but we keep pushing forward

Eariler today there was a knock at the door. It was Akron Children’s Hospital delivering Gavin’s IVIG infusion supplies. I guess I didn’t realize it was already that time of month again. Gavin has been getting these delivers for more years that I care to remember and as much as… Read more »

Gavin’s NOT having a good day and it’s taking a toll on all of us

Holy shit! Gavin is not having a good day by any stretch of the imagination. He’s been on overload all morning long. It’s crystal clear that he’s extremely stressed out right now and actually in distress. Maybe it’s from a long day with his grandparents and not because they’ve done… Read more »

Gavin went to bed not feeling well and I’m worried

Gavin had a really stressful day yesterday. He did great with having to get more bloodwork done but it took a lot out of him. As the day went on, it was clear that he was at the end of his rope. The boys were being annoying, as little brothers… Read more »

It’s all about Gavin this morning

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Gavin’s bloodwork is done for the week and I’ll follow up with the pharmacy this afternoon. I need to remind them to have his medication delivered by Wednesday evening. There’s plenty of time for them to get the results and gain approval in order to release another seven days worth… Read more »

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