Jul 09 2018
I’m desperately trying to change the course of our day for the better. The boys want to go back to Quail Hollow and go hiking today. I don’t exactly feel up to doing that and I know Lizze is still a bit under the weather. Having said that, it’s a very positive activity and it …
Jul 09 2018
We had a pretty good day in our little corner of the world. The boys went to a cookout with Lizze’s parents, Lizze rested because of a really bad migraine and I hung out with Gavin. This whole thing with Gavin sucks but we’re making the best of it. In an effort to make Gavin’s …
Jul 08 2018
In Part 2 of Talking with a Schizophrenic, Gavin details his latest mission to save the timeline from his evil self. It’s very important to understand that this is not an issue of an overactive imagination. If you missed Part 1, you can find that here. In Gavin’s mind, these things are actually happening and …
Jul 08 2018
Over the last decade, I’ve put a great deal of focus on the fact that all people touch by Autism are unique and not cookie cutter copies of each other. I also stressed the same applies to Autism families as well because no two are exactly the same. Both of these statements are true and …
Jul 08 2018
I haven’t heard anything about Gavin’s IVIG infusion meds yet and he will be missing his sixth infusion in a row on Monday. As a result, Lizze and I are having to make some difficult decisions. It’s completely reasonable to assume that with every missed infusion, the risks to Gavin’s health increase. We don’t know …
Jul 07 2018
Lizze was still in a bad place yesterday. She was in so much pain, she could barely move. Unfortunately, that put a dent in our plans to take the boys hiking at Quail Hollow. We ended up having Lizze go back to bed to get some rest, while I took the boys on my own. …
Jul 06 2018
Gavin’s awesome immunogist just called and wanted to know what was going on. I explained what I was told by the pharmacy and she was frustrated by it as well. Neither of us are sure what’s going on and why there’s such a delay. She’s going to get to the bottom of this, one way …
Jul 06 2018
Until we’re given other instructions, we will not be taking Gavin anywhere there are crowds of people. I’ve left messages once again today in regards to Gavin’s IVIG infusion medication and I’m waiting to hear back. At this point in time, and in the absence of definitive information one way or the other, we’re going …
