Jan 08 2022
As the title states, the coolest thing happened today. I’ve been talking about Gavin’s ever-growing level of independence, and today marked a big first for him. Gavin gets his IVIG Infusion supplies delivered every month. He organizes them into kits and even does the infusions on his own. I have almost zero involvement in the …
Jan 12 2021
Gavin missed his IVIG Infusion yesterday because his supplies never showed up. I called the pharmacy and they are apparently waiting on a new order from his doctor. They expect to have that some time today and then we should get the supplies this week sometime. This always makes me nervous and I know it …
Sep 02 2020
It’s been an emotionally exhausting day. I spent most of today trying to keep myself focused on the things I have control over. Unfortunately, there’s a great deal that I have no control over and that sucks. I was very consumed with waiting on Gavin’s lab results to come back from yesterday’s repeat lab work. …
Jul 09 2018
I’m desperately trying to change the course of our day for the better. The boys want to go back to Quail Hollow and go hiking today. I don’t exactly feel up to doing that and I know Lizze is still a bit under the weather. Having said that, it’s a very positive activity and it …
Jul 09 2018
We had a pretty good day in our little corner of the world. The boys went to a cookout with Lizze’s parents, Lizze rested because of a really bad migraine and I hung out with Gavin. This whole thing with Gavin sucks but we’re making the best of it. In an effort to make Gavin’s …
Jul 08 2018
In Part 2 of Talking with a Schizophrenic, Gavin details his latest mission to save the timeline from his evil self. It’s very important to understand that this is not an issue of an overactive imagination. If you missed Part 1, you can find that here. In Gavin’s mind, these things are actually happening and …
Jul 08 2018
Over the last decade, I’ve put a great deal of focus on the fact that all people touch by Autism are unique and not cookie cutter copies of each other. I also stressed the same applies to Autism families as well because no two are exactly the same. Both of these statements are true and …
Jul 08 2018
I haven’t heard anything about Gavin’s IVIG infusion meds yet and he will be missing his sixth infusion in a row on Monday. As a result, Lizze and I are having to make some difficult decisions. It’s completely reasonable to assume that with every missed infusion, the risks to Gavin’s health increase. We don’t know …
