Why I withheld my son’s IVIG infusion this week  

I’m pretty sure I told you that Gavin’s IVIG supplies were delivered on Wednesday. What I didn’t explain was that we held off on giving it to him until Friday. 

The reason behind that seemingly counterintuitive move was simple.

By the time we could have given him his infusion on Wednesday, it would have been really late in the day.… Read More

We have no kids today

The kids were gone last night and won’t be back until dinner-ish today. Lizze and I stuck close to home last night because our plans today will take us out of town for a little bit.

It’s not going to be anything major, but we’re going to lunch and to do some shopping. 

We went to bed relatively early last night and I was up pretty damn early this morning because my Dad was coming over to help me fix the ass backwards plumbing in our shower. 

It took a bit of improvising but we now have a working shower again and for that, we’re grateful. 

I’m feeling pretty energized today and not at all needing to take a nap.… Read More

Major Update on Gavin’s missing medications

Throughout the day, I had about half a dozen different conversations in regards to Gavin not receiving his IVIG medications and supplies. I spoke with his doctor, his insurance case manager and the head pharmacist at the pharmacy we want to switch to for his supplies. 

Let’s get this out of the way first. 

Gavin’s doctor’s office was finally able to get things straightened out with our current supplier.… Read More

My son is missing his critical medications for the month

A large part of my stress load today is the result of Gavin’s IVIG supplies never showing up. 

I was contacted on Friday by the supplier who said that Gavin’s shipment is delayed because they have been unable to get refills from the doctor. They were going to fix this yesterday but that never happened. 

I spoke with Gavin’s doctor today and they have never been contacted for a refill or it would have been done immediately.… Read More

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