This can really take it out of an #Autism parent

Lizze and I will be getting a break this fine Sunday. The boys will be spending the day, and subsequent night with their Grandparents.  It feels like we haven’t had a night off in forever, but it’s only been about …


Why I withheld my son’s IVIG infusion this week  

I’m pretty sure I told you that Gavin’s IVIG supplies were delivered on Wednesday. What I didn’t explain was that we held off on giving it to him until Friday.  The reason behind that seemingly counterintuitive move was simple. By …


Cool pictures from the last few days

I wanted to take a few minutes tonight and share some pictures from the last couple of days. I’m a little behind on the updates but you can at least see some in the moment shots.  I’ll follow up tomorrow …


We have no kids today

The kids were gone last night and won’t be back until dinner-ish today. Lizze and I stuck close to home last night because our plans today will take us out of town for a little bit. It’s not going to …


Major Update on Gavin’s missing medications

Throughout the day, I had about half a dozen different conversations in regards to Gavin not receiving his IVIG medications and supplies. I spoke with his doctor, his insurance case manager and the head pharmacist at the pharmacy we want …


My son is missing his critical medications for the month

A large part of my stress load today is the result of Gavin’s IVIG supplies never showing up.  I was contacted on Friday by the supplier who said that Gavin’s shipment is delayed because they have been unable to get …


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