There is no cure for what my oldest son has but we keep pushing forward -

There is no cure for what my oldest son has but we keep pushing forward

Eariler today there was a knock at the door. It was Akron Children’s Hospital delivering Gavin’s IVIG infusion supplies. I guess I didn’t realize it was already that time of month again.

Gavin has been getting these delivers for more years that I care to remember and as much as I hate the fact that they’re necessary, they are.

These supplies allow for his twice a weeky IVIG infusions. Without these infusions, Gavin wouldn’t have a functional immune system. It’s a heartbreaking reality that people like Gavin and families like ours have to live with. There’s no cure for Common Variable Immunodeficiency and while the treatment is available, it’s also incredibly expensive.

Over time, it’s likely that Gavin’s condition will continue to worsen and he will need higher and higher doses of this life saving medication.

I believe in May, he has a follow up with his immunologist and we’ll see how he’s doing. If he needs an increase, we’ll discuss that but he’s doing okay right now and that’s certainly a blessing.

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