Read more about the article We have no kids today
My thoughts

We have no kids today

The kids were gone last night and won't be back until dinner-ish today. Lizze and I stuck close to home last night because our plans today will take us out of town for a little bit. It's not going to be anything major, but we're going to lunch and to do some shopping.  We went to bed relatively early last night and I was up pretty damn early this morning because my Dad was coming over to help me fix the ass backwards plumbing in our shower.  It took a bit of improvising but we now have a working shower again and for that, we're grateful.  I'm feeling pretty energized today and not at all needing to take a nap. I know I probably should take advantage of the time…

0 Comments
February 25, 2017
Read more about the article How automating the lights in my house helps my son with #Autism to sleep
My thoughts / Vivint Gives Back

How automating the lights in my house helps my son with #Autism to sleep

If you're a regular reader, you know about all the struggles we face in regards to sleep with two of our three kids with Autism. The biggest challenge over the years, has been with Emmett.  We've never been able to really nail down what his issues were related to, and we've only been met with sporadic success until recently.  I've spoken many times before about Vivint and how I've implemented their technology throughout our home, in order to make it safer. Since our initial installation, I've been finding more creative ways of using this tech to help my wife and I better care for our three boys with Autism.  It's safe to say that I've been inspired by my Vivint experience, and bitten by the home automation bug.  As I've made small…

0 Comments
February 24, 2017
Read more about the article The weird things my son with #Autism says
Gavin / My thoughts

The weird things my son with #Autism says

The things I talk about in this post are not meant to be disrespectful for Gavin. If you're an Autism parent, you'll probably have at least some experience with your kid saying something weird in front of someone in public. They don't mean anything by it. It's just those pesky, awkward social and conversational skills.  We've all been there and it's okay to talk about these moments because if we don't have a sense of humor, we'll go crazy at a much faster pace.  It's a sign of a good day when I've made it this far without collapsing from exhaustion. 😁  The boys got off to school without too much headache and we really do appreciate the effort they put in to make that happen. Not having to deal…

0 Comments
February 24, 2017
Read more about the article My son’s sensory issues totally kicked my ass today
Emmett John / My thoughts / Sensory / Shoes and Socks

My son’s sensory issues totally kicked my ass today

Mother of God, I didn't think we were going to survive this morning. Everyone was in a great mood and that's awesome. Elliott and Emmett were getting along and there wasn't any fighting whatsoever.  Let me tell ya, that almost never happens.  All of that awesomeness ended the moment it was time to put shoes and socks on. Our mission of helping Emmett tolerate his shoes and socks began about 7:15 am and we finally arrived at the school at 9:00 am.  It took almost two hours to work through the sensory issues this morning. There was so much screaming and panic over how his socks felt funny, I wouldn't be surprised if my neighbors, three doors down could hear him.  We came so close to throwing in the towel and…

12 Comments
February 23, 2017
Read more about the article Why #Autism Parenting blogs are SO important
Inspirational Posts / My thoughts

Why #Autism Parenting blogs are SO important

There are always those people who don't understand or misunderstand the purpose of this site or my writing style. I wanted to provide some insight into the how's and why's because I've received a large influx of new readers and I'd like everyone to understand why I do this. I'm connecting with quite a few families that are just beginning their Autism journey. They're looking for a path, and I'm able to help provide them with a place to start and sanity as they move forward. When people are just beginning this journey, they feel very much alone. There are feelings of isolation and that no one understands. While some may not understand this, Special Needs parents find comfort in knowing they aren't the only ones depressed, frustrated, overwhelmed, imperfect,…

2 Comments
February 22, 2017
Read more about the article Pictures from our busy #Autism family day
Gallery / My thoughts

Pictures from our busy #Autism family day

I wanted to share some of the pictures from today. Included below are pictures from speech and OT to fun with our ferrets and running errands.  These simply help give you some insight into what goes on in a typical-ish day for my Autism family...  ☺ 

0 Comments
February 22, 2017
Read more about the article Major Update on Gavin’s missing medications
Common Variable Immunodeficiency / Gavin / General Update / Immunology / IVIG Infusion

Major Update on Gavin’s missing medications

Throughout the day, I had about half a dozen different conversations in regards to Gavin not receiving his IVIG medications and supplies. I spoke with his doctor, his insurance case manager and the head pharmacist at the pharmacy we want to switch to for his supplies.  Let's get this out of the way first.  Gavin's doctor's office was finally able to get things straightened out with our current supplier. The supplier appears to be who dropped the ball on this one.  Setting aside blame and focusing on what matters most at this very moment. I can share that Gavin's medications have been reordered. They should be arriving on Wednesday.  How am I going to prevent this from happening again?  The simple solution to fix this is going to be complicated…

2 Comments
February 21, 2017
Read more about the article My son is missing his critical medications for the month
Gavin / My thoughts

My son is missing his critical medications for the month

A large part of my stress load today is the result of Gavin's IVIG supplies never showing up.  I was contacted on Friday by the supplier who said that Gavin's shipment is delayed because they have been unable to get refills from the doctor. They were going to fix this yesterday but that never happened.  I spoke with Gavin's doctor today and they have never been contacted for a refill or it would have been done immediately. I believe them because we've never had a single issue with them in five or six years.  The doctor's office also stated that Gavin current script covers him through May of this year and he doesn't even need a refill yet.  They are currently working to resolve this and have checked in with…

4 Comments
February 21, 2017