This felt like an accomplishment today

The boys both had really good days at school today. Gavin's infusion went off without a hitch and aside from his joints popping out of socket, he's had a good day as well. A large part of my awake time today was spent rebuilding my server. You may not know this but I donate server space to a couple Autism related sites, one of which was met with an exploit that spread to another site. It took some time, patience and a bit more patience but I was able to get everything rebuilt, cleaned and back online. I'm actually getting pretty good at managing the server side of things and it felt like an accomplishment when I was done. While it's frustrating when these things come up, it's important for…

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Feeling frustrated but determined 

I'm pretty frustrated at the moment because I crashed about 10:00 am and slept much longer than I wanted to. I understand that my body clearly needed it but at the same time, life needs more attention than it's been getting. On the positive side, I feel much better and ready to tackle the day. How does one recover from chronic sleep deprivation? You can't make up sleep that was lost but is there a way to regain a healthy sleep wake cycle? Truth be told, my circumstances won't change much in the near future. The medications Lizze is on are very sedative, and while she's still adjusting to the changes, it's always going to make her sleepy to some extent. My goal is to get to bed by 10:00…

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Poor Gavin’s having some problems

Gavin's not been feeling well lately. It's really strange because it's seemingly random and what doesn't feel well is also. He's complaining about reflux, stomach aches, headaches and pain in his calf. He never seems to have them all together but instead, one at a time. There's no rhyme or reason for these ailments and there isn't much that we can do to help him. Last night he had reflux but woke up in the middle of the night feeling better in one way but worse in another because a stomach ache crept in to take the place of his reflux. So far, he's feeling better and has no complaints.  Hopefully, it stays that way.

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A chunk of awesome

It was a long night but a pretty great morning. Mondays have traditionally kinda sucked in our house. This morning however, things have gone quite smoothly thus far. Elliott is dressed and ready to go by 7:30 am. The biggest chunk of awesome is thanks to Emmett tolerating his shoes and socks this morning. Props to Lizze for helping to facilitate that chunk of awesome.

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Can #ADHD make it difficult for kids to fall asleep? 

It's now pushing midnight as I'm writing this and Mr. Elliott is still awake. He's having the hardest time falling asleep lately. Emmett was the one struggling for so long and now that he's doing better, Elliott is trading places with him. I'm not sure what this is all about, or how to help him through this. Tonight is the first time that I'm going to leave him to his own devices, rather than take him downstairs to sleep on the couch. By own devices I mean, he has to stay on the second floor and not wake up his brother. He's all snuggled up in his bed, watching something on Netflix. This is typically what I would do if we camped out in the living room. He knows Lizze…

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A few things I’m looking forward to this week

As we begin the new week, I'm feeling hopeful that things will be getting better. There will be new doors opening for us and I'm very optimistic that we can make some forward progress. It's also going to be a rather busy week as well. At last count, we have roughly a dozen appointments before the end of the week but most of them are local. That's always a good thing.. ☺ Emmett and Gavin will have Speech and Occupational Therapy on Tuesday. Both of them are looking forward to that. On the topic of Occupational Therapy, there will be a big change in store for Emmett. He's going to begin working with a peer during therapy and that's really cool. It gives him a chance to practice his social…

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Can you relate to this 1 major challenge of #Autism Parenting? 

I find it incredibly difficult to ensure that my kids with Autism maintain a balanced diet. For that matter, I have such a hard time simply getting my kids to eat anything. We are very much a sensory oriented family and that presents many obstacles for me as a parent. The biggest being how unbelievably sensitive my two youngest are when it comes to things like texture, smell, color, presentation, shape and yes, even packaging. When there is literally only a handful of things your child will eat, aiming for a balanced diet becomes a pipe dream. How many of you can relate to my experience? Please share examples of your challenges with feeding issues in the comments below...  

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The biggest thing working against me today 

The boys have been doing pretty great this morning. Gavin's struggling a little bit, but overall, a pretty smooth morning. Lizze had a rough time falling asleep because she's not yet adjusted to her new medication adjustments. She fell asleep really late and was up early with the boys. This meant I was able to sleep in for a change. I'm super grateful for that.. Unfortunately, I'm not feeling so well today. I don't know if I'm getting sick or what but I certainly feel as though I am. I may try to close my eyes in order to try and shake this but I'm not sure if that's gonna help.

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