Read more about the article I don’t even know what day it is
My thoughts

I don’t even know what day it is

The boys have had a pretty good day so far. They were so quiet that I was able to grab a short nap while they were playing Xbox together. We're on the final day of our four day weekend, and it feels more like a Sunday than a Monday. I have to eventually run out and grab a few things the boys will need for school this week, but aside from that, it's just a lazy day. The week is going to be thrown off because it does feel like a Sunday and that will keep me a day behind throughout the week. It's weird how that works but this kind of weekend always throws off my internal clock. I'm hoping to have a peaceful afternoon and evening. We need to…

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January 16, 2017
Read more about the article 2 behavioral oddities reminded me that I’m only human
Gavin / My thoughts

2 behavioral oddities reminded me that I’m only human

Unfortunately, Gavin's had a rough day. I feel I need to stress that this wasn't behavioral, at least in the way it would have been a few years back. The first issue is in regards to Gavin's bladder problems returning today for the first time in a long-ish time.  This is par for the course with Gavin because these things pop up now and again. The first thing we will do to address this is work with the Miralax again. We had backed off a bit because everything was going well. That's all we can do at this point. As for the second issue or challenge, I think that was probably harder for me than it was for him. The problem was that Gavin required a great deal of patience…

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January 16, 2017
Read more about the article One of my kids just arrived home with new shoes
Emmett John / My thoughts

One of my kids just arrived home with new shoes

Mr. Emmett spent a large part of this morning with his grandparents. They wanted to undertake the difficult task of finding Emmett shoes he will wear. Emmett just arrived home a few minutes ago and with him, is a pair of shoes he's pretty excited about. I'm super grateful for the help and I'm glad Emmett feels good about these shoes. That being said, I'm not going to hold my breath because I've been around this block a few too many times. I'm certainly not trying to rain on anyone's parade but I will remain cautiously optimistic.

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January 15, 2017
Read more about the article Aside from that I have no complaints 
My thoughts

Aside from that I have no complaints 

After a night without sleep because Emmett kept having nightmares, I began my day way earlier than an human being should. When Lizze woke up about 8 am, I was sent to bed and slept about four hours. While I feel better, I'm still exhausted overall. Thankfully, there are no plans today that will require me to drive because I'm too tired to do that. I will say that I'm in a really good mood. Sure, I'm tired but aside from that, I have no complaints. ☺

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January 15, 2017
Read more about the article How #Depression impacts my life
Depression / My thoughts

How #Depression impacts my life

Depression has been a constant companion of mine since I was a teenager. I've spoken very openly about this war I'm waging, and I'm going to try and provide you with some further insight. I've always referred to my struggles with Depression as a war because depression is a life long struggle, consisting of many battles. Some battles will be won, and others lost, just like any other war. It's important for me to share these battles because there's such a lack of understanding in regards to mental illness in general but more specifically, Depression. My hope is that my story will inspire others to share theirs as well. I've fought many battles against Depression over the years. There are times I feel like I'm gaining ground and others where I feel…

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January 14, 2017
Read more about the article #Autism Parenting Exhaustion 
Inspirational Posts / My thoughts

#Autism Parenting Exhaustion 

I've been dragging a little bit lately. Honestly, I feel completely spent, like all the life has been drained from my body. My diet and exercise journey has suffered as a result. The problem is probably more complicated than this, but I'm very sleep deprived. Even when the boys are gone for the night, my sleep patterns are still messed up. Almost every single night, one or both of the boys have a problem in the sleep department that requires me to either wake up or not go to sleep yet. Some may read this post and hear only excuses for my lack of discipline. Others who live a life similar to mine will better understand where I'm coming from. It's difficult to function when you didn't sleep well the…

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January 14, 2017
Read more about the article What his stomach looks like after an IVIG infusion 
My thoughts

What his stomach looks like after an IVIG infusion 

I wanted to take a minute and share a bit of insight into what Gavin experiences in regards to his IVIG Infusions. Gavin receives these medically necessary procedures twice a week and will do so for the rest of his life.  These infusions provide him with the immune system his body naturally lacks. Without these infusions, his body would not be able to fight off infections.  While these treatments are a blessing, they aren't  always pleasant.  The pictures below show what the infusion sites look like and it's incredibly unpleasant for him. Gavin has almost no body fat and so all the swelling is from the infusion 

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January 14, 2017
Read more about the article Quick Update 
General Update / My thoughts

Quick Update 

We had to get both Gavin and Lizze's bloodwork done this morning. Everyone cooperated pretty well and I'm grateful for that. We also had to stop by the UPS Store on the way home. Elliott and Emmett were distracted by Pokémon Go during the hour or so we were gone. They actually had fun, which made everything much easier. Everyone is in a good mood this morning, at least for the most part. I'm hoping that good mood will continue when we get home because I have some small projects I'd like to work on today.

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January 13, 2017