My thoughts Archives - Page 436 of 1481

Applying for Make-A-Wish is breaking my heart

I'm feeling a great deal of mixed emotions tonight as I write this entry. Lizze and I finally sat down today and began the application process to have Gavin get a wish granted by the Make-A-Wish Foundation. One of Gavin's specialists have been encouraging me to do this but I hadn't until today. During the separation, things were really hard and I was struggling to keep the boys above water. When Lizze moved back home, we began putting our lives back together and I still hadn't applied. The truth is that I was struggling with the idea of this whole thing because for Gavin to qualify, it means that things are pretty bad for him. It forces me to face his mortality and that's something I really struggle with. Below…

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December 1, 2016

An important Gavin update

There are too many thing to talk about with Gavin anymore, but I will briefly touch on how he's doing overall. Gavin's such a good kid. He tries so hard at everything in life and unfortunately, he's struggling. We're seeing more and more regression lately. Things like memory (especially short term), simple tasks and even walking have become more challenging for him. He's very easily confused and that frustrates him a great deal. On the positive side, his actual behavior is still a shining example for his little brothers. He caring, kind and gentle. He worries about everyone and always wants to help. Honestly, Lizze and I couldn't be prouder. ☺ Everything else is par for the course when it comes to the things that make up Gavin. They're…

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November 30, 2016

Bullying / Elliott / My thoughts

A very important Elliott update

This week has been focused on the kid at school who's bullying Elliott. We spoke to his teachers and the principal but if today was any indication of how this is going to play out, we're going to have a problem. While at Dr. Pattie's tonight, we spoke with Elliott about this and learned that there were more issues with this kid at school today. Apparently, aside from smacking Elliott on the back thoughout the day, he's also throwing pencils at him during class as well. Elliott was hit in the leg today and when he told his teachers, they basically said they didn't see it happen, so they can't do anything about it. Was Elliott hurt by the pencil? No he wasn't, but is that really the point? …

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November 30, 2016

My thoughts

Breaking new ground as a family

One of the things that we want to begin this week is some new Christmas traditions with the boys. We've never really done anything major over the holidays and especially leading up to them. Ever since Lizze and I went through our separation and subsequent reconciliation, we've gained a new appreciation for things like this. I'm not sure what we're going to do but when I was a kid, we used to make a big deal about the holiday TV specials. Lizze and I were kicking around the idea of making a special night out of this and having caramel popcorn or something like that. Lizze wants to do some Christmas light chasing as well. That's free and fun. :-) We want this to be less commercial and more about family. The…

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November 27, 2016

My thoughts

Hanging out with my kids

The boys were up early once again. This is beginning to become a habit. I got up with them between 6am and 7am. Everyone's in a good mood and that's always a great way to begin the day. Gavin's in the middle of his IVIG infusion this morning because we didn't get to it last night. So far, he's doing great with it. I let Lizze sleep in while the boys and I hung out watching Ant Man. There really aren't any plans for today. My main and most ambitious goal is survival. Anything that goes above and beyond that lofty goal is just a bonus.. ☺

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November 26, 2016

Gavin / My thoughts

How my son is driving me crazy

I'm going to be very honest. Gavin is driving me absolutely crazy today. It's not his fault but his behaviors are just getting under my skin today. There're a couple of newer things that seem to be problematic for him and they do seem to be of a more frustrating nature for me personally. Of course, we have the typical incessant talking, bragging about his superhuman abilities and how he's saved the universe again. These things take a toll on me after awhile, especially when I'm already stressed out a million other things. There are some newer things that he's doing or rather not doing that are adding to the mix. His short term memory is seemingly nonexistent anymore. Short term memory has never really been his strong suit but it's never been…

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November 25, 2016

My thoughts

It’s not as bad as it was

It's proving to be a decent day here in The Autism Dad household. We're watching a movie with the boys and Gavin's sleeping off his morning medications still. Lizze might be venturing out into the Black Friday craziness with her Mom after dinner. The boys and I just might go Pokémon hunting at some point but it's really cold out. Anyway, things have been improving since this morning and for that I'm grateful.. ☺

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November 25, 2016

My thoughts

Feeling Rundown

Elliott's been incredibly animated this morning for some reason. He's all over the place and frankly, driving me crazy. I'm feeling a bit rundown today and not wanting to do much of anything. Even though we had a pretty awesome day yesterday, it was still stressful and exhausting. I'm probably just needing to recover a bit. I hope everyone is doing well and if you're venturing out into the madness of Black Friday, be careful... ☺

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November 25, 2016