Dec 18 2017
So I got about zero sleep last night. I couldn’t get comfortable and as the morning drew closer, the pain began to return. I’m in the waiting room at my doctor’s office right now. I arrived early because I’m hoping to God that I can get in early. I feel nauseated and I just want …
Aug 07 2017
I wanted to share a bit of positive news tonight before I go to bed. This will be quick because I’m emotionally and physically exhausted. The doctor called with Gavin’s lab results, and things have improved. His platelets are at 160, his WBC count is 4.4, and his Neutrophil is 2.4. These are all movements …
Nov 30 2016
There are too many thing to talk about with Gavin anymore, but I will briefly touch on how he’s doing overall. Gavin’s such a good kid. He tries so hard at everything in life and unfortunately, he’s struggling. We’re seeing more and more regression lately. Things like memory (especially short term), simple tasks and even …
Nov 20 2016
It’s time to play a little game called catch up. When we met with Dr. Reynolds last week, we also made some decisions about Elliott and Emmett. Unfortunately, I got tunnel vision with all that was happening to Gavin that I never got around to this. After speaking with Dr. Reynolds about both Elliott and Emmett, …
Oct 20 2016
“I rarely have news that is so positive that I might even sleep better but today is one of those days” ☺️
Oct 07 2016
“The boys got off to school after a rough morning. Afterwards, I took Gavin to get him bloodwork done for this week. He has bloodwork done every single Friday, in order to get refills of the Clozapine.”
Sep 28 2016
We’ve got to figure something out with these bladder issues because they are now constant and very rarely ever let up on him. Poor Gavin keeps apologizing for having to go to the bathroom over and over and over again. I keep telling him that it’s not his fault and he needn’t apologize for it …
Sep 16 2016
After taking the Elliott to school this morning, Gavin and I had to both have bloodwork done. Gavin’s bloodwork was related to his meds and other various health issues. Mine was just a followup cholesterol check before my next check up in a couple weeks. Both of us had to fast and by the …
