Unfortunately, the news I have to share tonight is not of the positive kind.  Over the last few days, Gavin has been experiencing a rather worrisome new symptom. What we're seeing could be related to his autonomic dysfunction, epilepsy, neuromuscular issues or childhood disintegrative disorder. It could also be completely unrelated to anything we currently know about and is instead something altogether new. Gavin has been losing control of his legs. What do I mean by that? I mean that he will be walking and then his legs just stop listening to his brain. That's actually how Gavin explains it.  It's to the point that he's afraid to use the steps because he's afraid he'll fall.  This is something that I need to speak to his pediatric neurologist on Monday…

Lizze and I made arrangements to take Gavin to see a movie this afternoon. The boys went to their grandparents for a few hours after school, in order to make this possible.   I was really excited to have the three of us spend some time together outside the house and Gavin loves movies.  As we were pulling into the parking lot of the theater, my heart sank.  Gavin informed us that his friends are going to meet us there. We asked how they were going to pay for tickets.  Gavin explained that he has a contact that works in the theater and that contact makes all the arrangements for his friends. I call them (but never to his face) his invisible group of super best friends because I have to…