Sadly, he’s hearing voices again

Gavin had a pretty good day, at least physically. On his first full day of being an adult, he spent a large part of it hearing voices. Gavin's was officially diagnosed with Schizophrenia a few years ago. This is far from the first time Gavin's heard voices. In fact, he sorta lives in a perpetual hallucination. He has friends that only he can see and he goes on dangerous missions with them on a daily basis. These are the typical voices he hears. Unfortunately, what we're seeing now is that he hears us talking to him when we aren't. He's constantly keeps finding us because the says we called for him. I'm not sure what's going on with this but it's not something that's been very common over the years.…


Is this a new hallucination or just a dream?

Gavin's been doing okay as far as his Schizophrenia is concerned. We see the obvious symptoms every single day because they've never been completely controlled. Thankfully, Gavin's hallucinations are not as dark as they used to be and they used to be really dark. I never know what to think when he tells me about a dream because it could very easily be a hallucination and he simply wouldn't know the difference. Today he informed me that he'd just saved Christmas from the clutches of evil. He didn't go into any further details, so I'm not sure if it was a dream or a mission. Color me intrigued because it's different than I normally hear from him and I'd actually be interested in hearing the rest.


It’s not easy raising a #Schizophrenic teenager with #Autism

We had to temporarily restrict access to the kids Nerf guns as a result of them getting to carried away. They had been shooting each other in the face and that broke a major safety rule. Gavin just came downstairs and asked if he could have his Nerf gun back because he was being called in a mission to patrol Shuazoom. We gave it back to him because we didn't know what else to do. Gavin's Schizophrenic and honestly believes he's going on a real life mission. We didn't want to make anything worse for him by sending him into battle without his trusty weapon. Did we do the right thing? Who the hell knows. Schizophrenia is not easy to live with, whether you have it personally or you're caring…


Should I worry about this, because I don’t know

Gavin and I went to get the damages to the car looked at today. Incidentally, there was over $1,500.00 in damages because some asshole felt the need to fuck with our car. That's really frustrating but at the end of the day, the car is a thing and what I'm about to share with you is so much more important. While we were on the way to have the car looked at, Gavin unloaded everything that had recently happened on me. You've heard of people having a dream inside of a dream right? I don't know how common that it but I've had dreams inside of a dream before, as have many others. The reason I ask is because understanding that will help you to better wrap your brain around…


Major Gavin Update: Clozapine change

You may remember that we began reducing the amount of Clozapine he's taking to manage the symptoms of Schizophrenia. Due to negative side effects that involve serious issues with his blood, we are reducing the dosage. Before we left for Florida, we worked with Dr. Reynolds to move Gavin from 600 mg/day to 500 mg/day. We didn't notice any Earth cracking changes and so once we returned from our trip, we made the next move. As of Monday morning, Gavin is only taking 400 mg/day. We haven't noticed anything at this point, that would make us want to return to the higher dose. That doesn't mean we aren't seeing concerning regression, because we are. The thing about the regression is that it's not likely tied to the Clozapine or the…


Why I’m worried about Gavin today

It started out like a typical Monday morning. It wasn't anything amazingly awesome, or horrifically terrible. The boys were tough to get moving but we got to school on time.  After dropping the boys off at school, I told Gavin to get his infusion supplies together. Every Monday and Friday morning, Gavin receives his IVIG infusion to treat his severely compromised immune system.  Typically, Gavin's very anxious to get this done because he he feels better once it's done.  Today however, Gavin essentially refused his IVIG infusion because he had a mission to go on, and he didn't want to go into battle with needles in his stomach. I can understand that, but he's never done that before.  I haven't yet learned the details of this particular mission or how…