Nov 30 2020
It’s been a really challenging day for about a million reasons. I was going to touch on some of those reasons but yet another issue has made itself known and this is going to be the priority until I know otherwise. Gavin is running what is a low grade fever for him. He’s very much …
Dec 17 2019
I’m burning the candle at both ends. I’m sleep deprived and not running on all cylinders. Emmett’s really struggling right now and last night he was in crisis. It’s not something I will go into details about but I’m currently working with Akron Children’s, his therapist and his mother to do whatever we can to …
Apr 13 2019
As I’m writing this, I’m sitting on the floor at the hospital, because Gavin was rushed here by ambulance tonight. We aren’t entirely sure what’s going on. He’s stable but in rough shape. We suspect it’s a reaction to his meds. I had actually recorded a pod this morning and talked about what’s going on …
Oct 31 2018
On Tuesday evening, Lizze’s grandmother passed away tonight. This was very sudden and it’s been a difficult evening for everyone. 😔 If you could please send you thoughts and prayers to Lizze and her family, they could really use it. We haven’t figured out what we’re going to tell the boys yet but I think …
Jun 05 2018
Gavin has now gone more than 24 hours without eating. For someone who loves their life around eat meal of the day, that wasn’t easy and it’s still going to be almost half a day before he’s able to eat. We will arrive at Akron Children’s Hospital in about 2 hours, and his scopes are …
Feb 08 2018
I received a call today from Gavin’s doctor. When I saw who it was, my stomach knotted up and my heart sank. They never call unless it’s bad news. I was right. Apparently, Gavin’s numbers are crashing again. I’m currently waiting for him to come out from having his labs drawn for the second time …
Dec 17 2017
I was trying to wait until I see my doctor in the morning but my back has gotten too bad. It’s making me physically ill and I won’t make it until tomorrow. My parents have the kids and we’re waiting to be called back. To be honest, it’s pretty gross and extremely painful. I’m nauseated …
Nov 20 2017
There’s quite a bit that happened today but only some of it I’m going to write about. There’s no major reason for excluding anything other than I’m tired and want to focus on the main things. We were supposed to take Gavin for his bloodwork this morning but he was in rough shape when he …
