So Gavin started running a low grade fever tonight

It's been a really challenging day for about a million reasons. I was going to touch on some of those reasons but yet another issue has made itself known and this is going to be the priority until I know otherwise. Gavin is running what is a low grade fever for him. He's very much like his mother in the sense that they usually run a bit low and almost never run a fever. Lizze was notorious for having really bad strep throat but never running a fever. Gavin's always been very similar. Elliott noticed that Gavin's ears were bright red and became concerned. I'm not worried about his ears being red but to help put his concerns to rest and that of Gavin's because Elliott said something to him,…


A long overdue update and a request for thoughts and prayers

I'm burning the candle at both ends. I'm sleep deprived and not running on all cylinders. Emmett's really struggling right now and last night he was in crisis. It's not something I will go into details about but I'm currently working with Akron Children's, his therapist and his mother to do whatever we can to help him. He's safe and at home. I'm managing things at home, and that's a huge plus. He's an Autistic kid who's being forced to deal with things no kid should have to deal with. He's been through a great deal this year and doesn't have the tools to cope with all of it. Your thoughts and prayers would be greatly appreciated for both Emmett and Elliott. Gavin can always use them for different but…

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Gavin’s in the hospital and here’s what happened

As I'm writing this, I'm sitting on the floor at the hospital, because Gavin was rushed here by ambulance tonight. We aren't entirely sure what's going on. He's stable but in rough shape. We suspect it's a reaction to his meds. I had actually recorded a pod this morning and talked about what's going on with Gavin. It's easier to just listen than for me to try and explain everything. Since this pod was recorded, we had to start him back on the Clozapine, per his doctor. Gavin was not doing well, and Clozapine is the only medication he can take. We suspect he's having a reaction to going back on and it was pretty scary. It's still scary because he's not doing good. About midnight, Gavin collapsed in the…


Please send your thoughts and prayers

On Tuesday evening, Lizze's grandmother passed away tonight. This was very sudden and it's been a difficult evening for everyone. 😔 If you could please send you thoughts and prayers to Lizze and her family, they could really use it. We haven't figured out what we're going to tell the boys yet but I think we're going to wait until after school. They have some fun activities planned and will be wearing their Halloween costumes to school. We want them to have that and we'll figure out what to tell them while their gone. I hate writing these posts but I also know that we could use the thoughts and prayers during this very difficult time. Thank you all so much, I really appreciate it.


Please keep Gavin in your thoughts and prayers this morning

Gavin has now gone more than 24 hours without eating. For someone who loves their life around eat meal of the day, that wasn't easy and it's still going to be almost half a day before he's able to eat. We will arrive at Akron Children's Hospital in about 2 hours, and his scopes are planned for noon. It's going to be a long morning and afternoon. As of right now, Gavin's in good spirits and we have hope that he will be just fine. We know he'll be physically okay but emotionally, he's going to likely struggle, at least in the short term. For now though, he's relaxing and playing his tablet. Please keep Gavin in your thoughts and prayers this morning. I know that I will definitely appreciate…


The doctor called with heartbreaking news

I received a call today from Gavin's doctor. When I saw who it was, my stomach knotted up and my heart sank. They never call unless it's bad news. I was right. Apparently, Gavin's numbers are crashing again. I'm currently waiting for him to come out from having his labs drawn for the second time in three days. I didn't get all the numbers but they informed me that his Absolute Neutrophil count (ANC) dropped from 2.9 to 1.8 in less than a week. This is not a good thing and I wish I knew what was responsible for this but no one knows for sure what it is. The most likely culprit is the Clozapine but it's also possible it's part of his CVID (Common Variable Immunodeficiency) as well.…


I’m in Urgent Care

I was trying to wait until I see my doctor in the morning but my back has gotten too bad. It's making me physically ill and I won't make it until tomorrow. My parents have the kids and we're waiting to be called back. To be honest, it's pretty gross and extremely painful. I'm nauseated from the pain now and I'm writing this to distract myself. I'm hoping that it's just antibiotics but they may have to cut it open. Not fun.. 😢 I'd appreciate some positive thoughts.. ☺


A couple things but first, we need some thoughts and prayers

There's quite a bit that happened today but only some of it I'm going to write about. There's no major reason for excluding anything other than I'm tired and want to focus on the main things. We were supposed to take Gavin for his bloodwork this morning but he was in rough shape when he woke up. He was in a lot of pain, mostly cramping but it was enough that we wanted him to rest. Anything can trigger a medical crisis with him and we don't take chances. Hopefully, we'll be able to get this done in the morning. The boys and I had a pretty good night. Lizze was visiting her grandmother in the hospital, so it was just the guys tonight. Before I go any further, please…