Please keep Gavin in your thoughts and prayers

It's been a hard day for me because I spent some time with Gavin and I've pretty much confirmed that he's getting worse. I should back up a bit and explain what I'm referring to. I had mentioned previously that it was going to be a quiet day. I had some things around the house I wanted to do and there were a few errands I needed to run as well. As per the norm, Gavin went with me to help. We were on our way to the bank, after filling up the water jugs and he began telling about some things he's been experiencing. The first thing he divulged was that he's been having nightmares again. The unsettling part of that is these nightmares involve the house burning down.…

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Please send your thoughts and prayers

Without going into much detail, I'm writing tonight in order to ask that you guys send your positive thoughts and prayers in our direction. On Wednesday afternoon, Lizze's Dad suffered a massive heart attack. He will be undergoing quintuple bypass surgery in the morning. This is very serious but hope is high that the surgery will go well and he will be back in his feet. Please send your positive thoughts and/or prayers. They are greatly appreciated and humbly accepted.

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We received more bad news today about our son

I'm keeping this super short because I feel sick to my stomach. I need to share that we received Gavin's lab results back this evening, and unfortunately it's not good news.  Gavin's numbers across the board have dropped since yesterday. His Neutrophil level has dropped from 2.8 last month, 2.0 yesterday, and 1.8 today. His actual WBC was 3.8 yesterday and today it was 3.2 (I'm pretty sure that what they said.) After speaking with his doctor, Gavin will continue with the Clozapine for now, but needs blood work every single day. That's got Gavin really stressed out, and I don't blame him. I'm barely holding it together myself and it's not actually happening to me.  As I understand it, if or when he hits 1.5, we pull the plug…

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We need your thoughts and prayers

I received a call from the pharmacy this afternoon, in regards to Gavin's Clozapine refill. Apparently, there are problems with his lab work from this morning, and he may not be able get his meds refilled. The reason Gavin gets blood work so frequently, is because we must ensure his white blood cells count before they will release another refill of his Clozapine. One of the big concerns with Clozapine is its impact on white blood cells. For the first time in close to five years, his white blood cells count has taken a significant hit. Neutrophil count is what they are looking for, and they range from 1.5 - 8.0, at least from what I can find. Gavin's Neutrophil has dropped down to 2.0. This is alarming and we…

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We had a death in the family

UPDATE: https://www.theautismdad.com/2017/07/24/why-our-kids-with-autism-wont-be-attending-the-funeral/   Over the weekend, our family lost a truly amazing person. She was my Great Aunt and my Grandmother's sister. She was like a second Mother to my Dad, and a huge part of my life growing up. Please keep my family, especially my Grandmother, in your thoughts and prayers during this difficult time. Thank you.

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Please keep Elliott in your thoughts 

Elliott isn't feeling good. He's got a headache, stomachache, and is hugging a puke bucket. This began a few hours ago but has gotten worse in the last thirty minutes.  I don't know if he's actually sick or not.  Everything he's complaining about is also signs of dehydration as well. We have a really hard time getting Elliott to drink enough water. When one doesn't drink enough water, one can get headaches, nausea, and constipation.  We have been working with both him and Emmett, in an effort to get them consuming more water. It's proven to be difficult on a good day. I'll talk about what we are doing in a different post.  The last thing I want is for him to be sick. I'm hoping that sipping water will…

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Please keep Lizze in your thoughts and prayers 

The boys are gone tonight, and Lizze had I have enjoyed a really quiet evening. I had a few errands to run, before shutting down for the day. Lizze and I are both exhausted from a long day. She ended up falling asleep on the couch during the first quarter of the Cavs game.  I have zero plans of getting up before lunch time, of course that depends on when the boys get home. 😁  I'd like to get a nice walk in today if possible. Lizze isn't feeling well, but hopefully she'll feel better in the morning, and will be able to join me.  Speaking of Lizze, I would really appreciate it if you kept Lizze in your thoughts and prayers. She's absolutely miserable, and what she has coming down…

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Please keep Elliott in your thoughts and prayers 

The boys came home for their Grandparents house, after a fun overnight visit. When Elliott walked in the door, I knew something was wrong when I say his face.  He looked pale and somewhat disoriented.  He kept saying he was okay, but it wasn't very convincing. I gave him a little bit to settle in and then I took his temperature. Unfortunately, my instincts we right and he was running a relatively high fever.  Both he and Emmett went to bed without a problem.  After a few hours, he woke up and came downstairs because he couldn't go back to sleep. He and I ended up camping out in the living room, because he was more comfortable in the couch.  The other benefit is that if he were to get…

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