Autism Archives - Page 286 of 715

Updates so big they almost don’t fit

There are a few things I need to update you all on. Some are bigger deals than others but all remain important. They aren't in any particular order of importance. It's just the order they popped out of my head. ☺ Gavin's spending the night and most of the day tomorrow with his grandparents. They will be celebrating his birthday with him and taking him shopping. Gavin was really excited and I'm happy to see him that way. An odd thing happened this morning. If I hadn't seen it myself, I wouldn't believe it. Emmett decided to wear socks to school today. This kid hasn't worn socks for the better part of two years now. I've no idea what brought this on and whether or not it was a one…

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January 16, 2018

Gavin / My thoughts

When your special needs child turns 18

I just got a letter from Social Security in regards to Gavin. He and I have an appointment with social security on January 25th in regards to Gavin becoming an adult. Part of Gavin turning eighteen means that things like this are going to come up. We're currently working on permanent guardianship, which will continue to allow us to manage Gavin's life when he can't do so for himself. Gavin's nervous about going because he's never had to go to one of these before and he's concerned about shots. I'm not sure where that came from but in his head, he think the social security worker will want to give him a shot. This appointment will be the first that we have to attend in order to keep Gavin's affairs…

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January 16, 2018

My thoughts

They finally went back to school

Thank God there's school today. I love my kids, I truly do but there schedule has been so messed up since before Christmas break, they need to go back. I need them to go back. There were closing around us but we weren't one of them. We got the kids off to school, and both Gavin's and Lizze's blood work done. All I need to do today is call the pharmacy and remind them to call for his lab results so they can deliver his Clozapine in the morning. Gavin's good until Wednesday night. So far so good. The day could definitely be worse but I'm grateful it's not.. ☺

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January 16, 2018

Gavin / My thoughts

Heatbreaking: I wish I could carry his burden for him

We celebrate Gavin's 18th birthday this week. This is a moment that's absolutely worth celebrating, for a million reasons. While there's so much to be grateful for, it's really hard not to notice things that are cause for worry. Over the last few days, I've noticed that Gavin is forgetting what some words mean. The one that took me by surprise was the word maintenance. He doesn't remember what it means to perform maintenance on something. There has been a few others as well but I can't remember them off the top of my head. I know I'm not the only one taking notice because Gavin will ask what a word means and Lizze will look at me in concern. Elliott and Emmett are noticing as well. They're very respectful…

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January 16, 2018

My thoughts

Dry air makes it so hard for me to sleep

I had a rough time sleeping last night. Majority of the problem was related to the air being so dry, it made me really stuffy and that always makes it hard for me to sleep. It's like a fricking desert. Around 2 AM I ended up downstairs on the couch. Its easier to breathe down there for some reason. I need to put the humidifier on the second floor because that should make a difference. I didn't end up fall asleep with Ruby curled up next to me. Thankfully, the boys are at Lizze's parents house, so I was able to sleep in. Gavin didn't need anything this morning and I wasn't disturbed. All we have to do today is take Lizze to the dentist, get stuff for the boys…

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January 15, 2018

Autism Parenting Struggles / Discussions / My thoughts

As an #Autism parent, why don’t you get a break?

We've established that #Autism Parents aren't getting the breaks they need. The next question is why. Why don't you get the breaks you need?

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January 15, 2018

Autism Parenting Insight / Gavin / My thoughts

Doing right by Gavin for his 18th birthday isn’t as easy as it sounds

Gavin will turn eighteen in a few days. To be honest, that's a pretty big deal for a number of reasons. The most obvious is that he's physically made it to eighteen and I say that because of his fragile health. He's had some close calls over the years and there were times we weren't sure we would ever see this day. Instinctively, we want to make a huge deal out of this day. We want Gavin to have the best birthday of his life thus far. There are so many things that Gavin will never be able to celebrate. Things like high school graduation, getting his driver's license, going to college and truly living on his own. As much as we want to through a huge party for him…

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January 14, 2018

Family Pets / My thoughts / Photography / Ruby

Ruby fell asleep on my lap

So I've found a new subject for my amateur photography hobby. Right now I'm loving taking pictures of Ruby. For one thing, she's adorable and the other is she's super cooperative. ☺ The ferrets are impossible to photograph clearly because they never stay still. I need a way better camera to capture them. Perhaps someday... ☺ Anyway, I took this one of Ruby while she was napping on my lap this afternoon.

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January 14, 2018