Read more about the article It was a hellacious day but filled with small blessings
Blessings / My thoughts

It was a hellacious day but filled with small blessings

Yesterday was a complete disaster but still managed to have some high points and things I'm grateful for. The day began like any other, with appointments to be at. This time it was the oral surgeon for Lizze. She needed to have two teeth pulled and this was simply supposed to be a consult, before scheduling the surgery. Lizze wanted to be sedated for the procedure and that needed to be scheduled. The address on the paperwork reflected an address about forty minutes away. We dropped the boys off at their Grandparents and hauled ass through rush hour traffic, making it there quite early. When our appointment time rolled around and the office was still closed, we figured something was wrong. Turns out there are two locations, one is about…

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March 29, 2018
Read more about the article I was able to give Gavin his #Clozapine tonight
Clozapine / Gavin / My thoughts

I was able to give Gavin his #Clozapine tonight

We were able to get Gavin's Clozapine refilled today. I had to make a few calls but the script was ready for pickup at 7:30 PM tonight. That's definitely a step ahead of what it's been for the last few months. I'm not sure if the new process we are trying with the doctors office is responsible for this pleasant turn of events or if it was the new bloodwork order, with very specific instructions. Maybe the stars aligned and everyone simply did their jobs. I guess the only reason I can is because I'd like to repeat this every week. It's a huge relief when I don't have so battle to get his lab results sent and his script refilled. All that truly matters right now is that I'm…

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March 12, 2018
Read more about the article This morning was all about Gavin
Gavin / My thoughts

This morning was all about Gavin

I spent the morning dealing with Gavin related appointments. He had an appointment with Dr. Reynolds and then needed to get his bloodwork done. We had about an hour long wait before we were finally seen by the good doctor. That wasn't too bad of a wait and I wouldn't have cared otherwise but I'm not feeling well this morning. One of the topics discussed was the nightmare it's been to get his Clozapine refilled. Frankly, I don't know who's to blame anymore because the lab points the finger at the pharmacy and the pharmacy points the finger right back at the lab. Dr. Reynolds issued a new STAT bloodwork order and made it very clear that the lab needs to fax the results to the pharmacy immediately. I don't…

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March 12, 2018
Read more about the article The number one source of stress in my life right now
Clozapine / Gavin / My thoughts

The number one source of stress in my life right now

I'm so incredibly frustrated today because for the millionth time, the pharmacy hasn't delivered or even filled Gavin's Clozapine prescription. I don't understand why this is so fucking complicated. Out of all the medications a pharmacy can fill, Clozapine is the most tightly controlled by a mile. One would think that they would have a procedure for filling it. My job is to make sure that Gavin's blood work is done once every seven days. The labs job is to fax the results to the pharmacy. The pharmacy must then fax the results to REMS. REMS will grant the pharmacy permission to release seven days worth of pills. This process repeats every single week and as long as everyone does their fucking job, we can continue to give Gavin his…

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March 6, 2018
Read more about the article I love him but he’s driving me crazy
Gavin / My thoughts

I love him but he’s driving me crazy

We're off to a good start this morning. The only downside is that the boys school clothes didn't dry overnight but we still have time. Gavin is really off this morning and I'm not sure what's going on with him. He's ready to go get his bloodwork done but I'm having to remind him to eat breakfast. If you know anything about Gavin is that he's extremely food motivated and never has to be reminded to eat. I need him to eat now because we won't be home again until lunchtime. I'm not in the mood to listen to him complain about being hungry, simply because he didn't eat breakfast. This is so weird because Gavin is very ridged and has to eat at certain times or he doesn't know…

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February 20, 2018
Read more about the article There’s way too much shit to worry about as a special needs parent
Clozapine / Gavin / Medication Management / My thoughts

There’s way too much shit to worry about as a special needs parent

I've been playing a very frustrating game of phone tag with the pharmacy this afternoon. I need to make sure they either look out for a fax from the lab or call and have it faxed over because Gavin needs his refill tomorrow. I cannot stress enough that Clozapine is the most tightly controlled medication in the United States for a reason. You do not fuck with this medication and it has to be taken seriously. The fucking stress that we experience simply because of this goddamn medication is inexplicable. I also reached out to his doctor and asked that they immediately email with the results of his his labs because I'd like to sleep tonight. They do that anyway but I feel better reminding them. They know how serious…

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February 15, 2018
Read more about the article Fingers crossed and prayers sent
Gavin / My thoughts

Fingers crossed and prayers sent

It's been an unexpectedly good morning. The boys got off to school without any issue and I'm now waiting for Gavin to have his labs drawn. The only other thing this morning is an appointment for Lizze. Today, I'm going to be focusing on making sure Gavin's Clozapine gets refilled tomorrow. I'm also going to be stressing out about the results of last his labs because they've been all over the place recently. Fingers crossed and prayers sent.

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February 15, 2018
Read more about the article Setting only one goal for myself today
My thoughts

Setting only one goal for myself today

The boys were supposed to have their ADHD medication check this morning. They were also supposed to be at the dentist yesterday as well. We've rescheduled both because they've missed so much school recently due to illness, we don't want them missing anymore unless it's absolutely necessary. Both appointments are rescheduled for after school hours and about a month out. While Elliott and Emmett's appointments have been cancled for today, Gavin still needs his bloodwork done. It's in the same place as the appointments we're but I feel like we made the right decision. Gavin wasn't home until after the lab was closed yesterday and I forgot to ask Lizze's Mom to take him while he was with her. Having the labs done today is cutting things a bit close…

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February 15, 2018