Despite it being a difficult day, here are a few things I’m thankful for

We had a difficult day today. I'm on edge and the boys have been cooped up for too long. Gavin's been freaking out a lot lately and Lizze is still struggling with losing her grandmother a couple weeks ago. It's been one thing after another and today was just tough on all of us. Having said that and in the spirit of Thanksgiving, there are a few things that happened today that I'm incredibly thankful for. For starters, Elliott still has a nasty cough but is otherwise feeling better. That's a very good thing and with any luck, he'll continue to improve. Eariler today, I was sitting in bed writing when I heard Emmett crying. Lizze and I were trying to figure out what had happened. He's wasn't talking about…

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It’s pretty bad but thank God no one was hurt

My thoughts are scattered. As a result of tonight's events, my stress level and worry are at all time highs. It's probably best if I just start at the beginning because I'm sorta processing all this in real time. My feeling are still raw and I'm unsure of what's going to happen. Pictures are on the last page. I learned that both Elliott and Emmett were having a rough day after I picked them up from school. Elliott had his mechanical pencil stolen and Emmett had his water bottle stolen. Neither of these things are huge deals to me but to the boys, it's was a huge deal and a betrayal of sorts. Things have been tight financially and so we haven't been able to really do anything that wasn't…


It was a hellacious day but filled with small blessings

Yesterday was a complete disaster but still managed to have some high points and things I'm grateful for. The day began like any other, with appointments to be at. This time it was the oral surgeon for Lizze. She needed to have two teeth pulled and this was simply supposed to be a consult, before scheduling the surgery. Lizze wanted to be sedated for the procedure and that needed to be scheduled. The address on the paperwork reflected an address about forty minutes away. We dropped the boys off at their Grandparents and hauled ass through rush hour traffic, making it there quite early. When our appointment time rolled around and the office was still closed, we figured something was wrong. Turns out there are two locations, one is about…

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Why today was a blessing

It's been a long day but a rewarding one. The boys had a good day at school, and we were able to confirm that everything is a go for Gavin's Wish Trip at the end of the month. I was able to get documentation from Wishes Can Happen that I can provide the school, in order to excuse the boys for the ten or so days we're going to be gone. I haven't heard from the bank yet but as soon as I do, I've decided to build an enclosure for the ferrets. This is going to be way easier and cheaper than trying to figure out a way to keep Lemme from escaping. When building something from scratch, I can design it without the exploitable escape routes. I'm not…


How Gavin handled tonight is a blessing

Gavin had his IVIG infusion tonight because and it went pretty well. In fact, Gavin set the entire thing up, all by himself. The only thing he didn't do was please the needles in his stomach. This is a pretty big step forward for him. There weren't any side effects tonight and he didn't complain of being sick at bedtime either. The last few nights he's gone to bed not feeling well. It's nice for him to go to sleep without any discomfort. He's been sick on and off this week. Thankfully, nothing major occurred and we didn't have to go to the hospital. That is a true blessing. ☺


A couple reasons I’m feeling blessed

We have a lot going on right now. At the time of publication, we still haven't received the results from Gavin's labs drawn a few hours ago. I'm on edge and feeling like I'm losing my mind.  Inside all the chaos, fear, worry, and heartbreak, I'm managing to focus on the blessings.  Right now I just want to share how blessed we are to have such supportive families. I'll only speak to our parents because they are the most actively involved and deserve to be singled out.  Both Lizze and I have very, very supportive parents. There's rarely a time that we've not been able to call them at the last minute to watch the boys when something comes up. Between our parents, we are able to get breaks from…


We have a new diagnosis and you won’t believe what it is

It's been a stressful morning for all of us. We had two appointments this morning before having to get our cat Cleo to the vet again. We were worried that she may need to be put down and that wasn't something we were prepared for.  We spoke with the kids and explained that she's most likely going to be fine, but there's a chance that she won't be. That went about as well as you'd expect, but it was necessary.  I was able to get ahold of my Mom, and she took the boys at the last minute, so they wouldn't have to go with us.  Long story short, Cleo has lost one pound since her last appointment aboht two months ago. When the vet was checking her out, he…

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