Read more about the article Gavin’s IVIG infusion was a complete disaster
Gavin / IVIG Infusion

Gavin’s IVIG infusion was a complete disaster

I mentioned earlier that we were all excited because Gavin got new tubing for his IVIG Infusions that have historically reduced the infusion times significantly.. Unfortunately,  that didn't prove to be the case today.   In fact, his infusion took almost 3 hours to complete and that's pretty close to the record for longest infusions I can remember. It was also really uncomfortable for him as well. He did manage to hold up really well but this sorta killed the excitement of the new tubing. It's possible it was just a bad placement of the needles and we'll see how things go on Fridays morning.

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September 29, 2015
Read more about the article Gavin’s new IVIG supplies arrived
My thoughts

Gavin’s new IVIG supplies arrived

You know something? When you're a special needs parent, it's really important to find joy in the little things.  It's been a pretty good day today and that's awesome.  The highlight of my day thus far was Gavin's new IVIG supplies arriving sorta on time. They should've been here last week but they're here now and that's what matters.  The really exciting part is that we received the shorter tubing so we can knock these infusions out in less than 30 minutes.  Even at the current time of 2 hours, it just seems to really be a lot for Gavin.  If we can get these done in 15 or 20 minutes, that would be awesome for Gavin. 😀 Sometimes it's the little things in life that make the biggest impact.…

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September 28, 2015