There’s good news and bad news

Yesterday was a really challenging day, for a great many reasons. I didn't share the results of Gavin's bloodwork from yesterday, mostly because I was too overwhelmed.  I wanted to bring everyone up to speed, because I'm getting a lot of inquiries from readers. They're concerned and I totally appreciate that.  Gavin's labs yesterday were a mixed bag.  The good news is that Gavin's platelet count in up to 152, which is good. His white cell count remained the same as the previous day, and came in at 4.0.. Unfortunately, Gavin's Neutrophil level dropped to 2.1 from 2.2 the previous day.  Like I said, it's a mixed bag. I'm still very concerned because his levels are still low. I'm also concerned that his Neutrophil levels are moving in the wrong…

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I’m smiling even bigger now

We've pretty much been trapped inside today. It's Hall of Fame week here is Canton, and it's taken over pretty much everywhere.  The boys and I were going to go to the park and walk, but the Police have the park closed down because of what I think is celebrity parking. The park is full of huge RV's and tour busses.  People are already camping out on the side of the road, in anticipation of the parade in the morning.  If I look out my windows, I can see all these tents lining the parade route which is less than a hundred yards from my house. It's going to be extremely noisy tonight because everyone camping out will be partying. There's usually a DJ and really loud music.  People don't…

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I’m so proud of Gavin 

Gavin's labs have been drawn and I'm waiting to get the results. I'm cautiously optimistic about today's numbers because yesterday they were coming back up.  In the meantime, I need to get Gavin's IVIG infusion started.  We are supposed to get a new delivery of his supplies today but they haven't arrived yet. There's enough to do today's infusion but we have nothing left for Monday.  I'm so proud of Gavin because he's taking this like a champ. He's already had his blood drawn four times this week alone and that will at least continue into the middle of next week. It depends on the results of said bloodwork.  He's not complaining, although he'd prefer not to have to go through this.  As hard as this is for Lizze and…

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Keeping myself distracted 

The weather isn't going to be kind to us today, and that kills the chances of walking outside. The boys are bored and, I need to find us all something to do.  There are some things I need to do before we can do anything. Once thays done, I'm thinking about taking the kids to a dollar movie.  Perhaps a movie is a good idea because I have hours to wait before getting Gavin's lab results back. I need to be distracted. 

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Fingers crossed, prayers sent, and positive thoughts… 

We're off to get Gavin's bloodwork done for the four time in four days. I truly hate doing this to him but it's what has to be done. I was hoping to go for a walk but the weather isn't looking too good.  I'm going to be very much on edge until we get the results back this afternoon. Based in the results, will likely determine how I proceed.  Waiting for the results to come in is absolutely torturous, and it eats me alive.  Finger crossed, prayers sent, and positive thoughts... 

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The reasons I MUST get my stress under control 

If you've been reading my blog for awhile, you know that I'm under tremendous amounts of stress. If you are new or maybe even forgot, I'll do a quick recap. I'm dealing with seriously high amounts of chronic stress.  I've been working to manage things but the past week or so has been really bad.  We had a death in the family, oddly enough our cat was diagnosed with Crohn's disease, and Gavin's bloodwork has not been good at all. I only mentioned the cat because we thought we were going to have to put her down, so we had to prepare ourselves and the kids. That wasn't fun.  I've got a million things on my mind and I feel like I'm drowning.  There are a few reason I absolutely…

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I have a little bit of good news today

Let me begin by saying thank you for all the thoughts and prayers that have come in from all over the world. Lizze and I are truly grateful for all of you. ☺  I have quite a bit of information to share and I'm trying to do it in an effective way. Feel free to ask questions below and I'll do my best to answer or clarify.  First things first. Gavin's lab results came back today and his numbers are up. They are up alot, but they are higher than yesterday, so that's an enormous blessing.  His Neutrophil levels are back to 2.1 and his white cell count is 3.4.  The reality is, his numbers are scraping the bottom of the okay range and we aren't sure why. I spoke…

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I crashed a few hours ago

After bringing Gavin home from his bloodwork this morning, I crashed in the couch. I haven't eaten or slept well, since this all began. It's not like I slept super well anyway.  After I woke up, I felt a little better but I have quite a few phone calls to make today.  I need to suck it up and get through this. 

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