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My thoughts

The boys and I did something we don’t often do anymore

The boys and I got to do something we don't always get to do.

0 Comments
October 18, 2016
My thoughts

I dug deep into my bag of parenting tricks this morning

"The boys made it off to school today but just barely. Elliott wanted to go to school but Emmett was complaining of not feeling well."

0 Comments
October 18, 2016
Elliott

Poor Elliott came home from school early yesterday and he’s miserable 

"I meant to call the school and give them a heads up but I was so tired from not sleeping well again. I dropped the ball and forgot to call"

0 Comments
October 18, 2016
Gavin / IVIG Infusion

Gavin had his IVIG infusion this morning and here’s how it went

"Gavin had a really good IVIG infusion this morning. He's gaining a little bit of weight so there's more body fat on his tummy to make needle placement less painful."

3 Comments
October 17, 2016
My thoughts

I’m ready to call it a night and it’s only 7am

Very few things are as bad as starting a Monday as tired as I am

0 Comments
October 17, 2016
My thoughts

This #Autism Dad is really trying to remain positive but it’s not going so well 

There's so little help available for parents of special needs kids. There's a massive shortfall in the availability of services needed for the Autism or special needs children themselves. Parents are even further down the ladder.

1 Comment
October 17, 2016
Clozapine / Gavin

A really important Gavin update

"There are two things we need to talk about. The first is the latest lab results for Gavin and the second is a different approach we're taking with the Clozapine."

0 Comments
October 16, 2016
My thoughts

Fricking irony 

There's really something a bit frustrating when it come to not being able to sleep, even when the kids aren't even home

1 Comment
October 15, 2016
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Latest from Instagram

Today is the day that RFK Junior and Donald Trump are supposed to announce the cause of autism. And from what we can glean at this point, it’s gonna be blamed on Tylenol during pregnancy in a couple of things. I know a lot of you have a lot of feelings about what they’re doing and I just want to remind you that it’s gonna be OK. I’m frustrated and angry and everything else myself but we got to stick together. Push back when we need to push back and we’ll figure everything out. You guys are amazing. Your kids are lucky to have you and we’ll talk soon. It’s very clear that many people feel unseen, dismissed, or ignored in the #autism community. I think we need to have some very honest discussions about how we can address this because we need to make changes. Everyone should feel seen, heard, supported, valued, and included. You are not a failure. Raising a child with autism, ADHD, or any disability comes with challenges, but being a good parent isn’t about perfection, it’s about showing up, loving unconditionally, and doing your best. Mistakes don’t define you, and neither do the things beyond your control. Your kids know they’re loved, and that’s what matters most. You’re doing an amazing job, even on the hard days. Remember that. 💙

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