May 10 2022
I had a conversation with someone today (did a video about it here) and I remembered a bit more about why I started doing everything I do. It was a reminder to me that while evolution and growth can be positive things, it’s important to stay true to your roots. I’ve been thinking alot about …
Jan 08 2022
As the title states, the coolest thing happened today. I’ve been talking about Gavin’s ever-growing level of independence, and today marked a big first for him. Gavin gets his IVIG Infusion supplies delivered every month. He organizes them into kits and even does the infusions on his own. I have almost zero involvement in the …
Mar 19 2021
The COVID pandemic has been a nightmare. While it does appear to be moving in the right direction, at least for now, it’s still keeping me apart from the people I love. That part is really challenging but someday soon, we’ll find ourselves on the other end of this. It hasn’t been all bad though. …
Feb 20 2021
It’s been a challenging weekend and I haven’t been keeping up with the blog as a result. This will be a super quick update and I’ll do more when I can. I wanted to let you guys know how Gavin is doing after his second dose of the Pfizer COVID vaccine. He recieved it at …
Feb 19 2021
It’s gonna be a hectic day. I have a two hour meeting after lunch and it should finish up just in time for me to get Gavin to the health department for his second dose of the Pfizer COVID vaccine. I’m a little concerned about how Gavin is going to handle the side effects. More …
Feb 13 2021
My kids are driving me bonkers today. They’re fighting with each other over stupid, pointless things. It’s almost like they’re fighting just to fight. I just defused an argument between Gavin and Elliott that was very quickly exculating. While this wasn’t stupid or pointless, it was completely avoidable. Gavin had been doing something, on purpose, …
Feb 07 2021
Gavin is bound and determined to move out. Until recently, I hadn’t really considered that to be an option but this is what he wants. As his parent, I want him to reach whatever level of independence he can achieve. With that in mind, I’m getting the ball rolling on this. The process is likely …
Jan 18 2021
It’s Gavin’s 21st birthday and we were off to a good start. His IVIG Infusion supplies showed up and he immediately went to work. Whenever he gets his supplies, I’ve taught him to put together kits containing everything he needs for each infusion. This serves a dual purpose. It helps him to learn how to …
