My kids with #Autism don’t do well with change but as their parent, I sure as Hell better be able to adapt

I was already on edge about our trip to the Cleveland Clinic this morning but our plans took a sudden, unexpected turn a few hours ago. First of all, I've said this a million times but it's worth saying once again. As an Autism parent, I have to be flexible. My loved ones with Autism don't like change but I damn sure better be able to adapt or life is run me over. The plan for this morning was a simple one. Lizze's Mom was going to pick the boys up and take them to school because we can't be in two places at once. We would take Gavin to Cleveland, deal with whatever resulted from this appointment, get his bloodwork done in the way home, hit the BMV for…

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Such is the life of an #Autism family

As many Americans are already aware, we're halfway through a 3 day weekend. We're having a family cookout today in honor of Labor Day. It's going to be hot out and the kids are probably going to be a handful when we get home but we don't get to see everyone all that often. I have to make it to the store before we have to leave because I need to buy a new hat. The one you've seen me wearing in all the pictures literally fell apart like paper when I tried to wash it last night. Being among those who sport a shaved head, I need the protection from the sun. Anyway, I don't think I'm going to end up walking today but I will in the morning.…

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You can’t put a price on getting a break

The boys are off to their Grandparents for the afternoon and we have some time to ourselves for the first time in awhile. They won't be gone too long and we're pretty much broke, so we aren't doing much. We did go walking though and that's important. At least we got to do something without the kids. I know so many familes that can't even do that. It's important that we not take even the smallest thing for granted. ☺ That said, I would have really liked to take Lizze to dinner and I've been craving Chipotle but it is what it is. At the end of the day, we got a small break and you can't put a price on that.

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@GetSpectrum has to come out again and this is why it’s upsetting my kids with #Autism

The kids woke up this morning and all was well until they learned that Spectrum had to come back out again because there's an apparent problem in our lines somewhere. I didn't think it was a big deal and that as the person dealing with this directly, I was the only one frustrated. I was wrong. Very, very wrong. Elliott and Emmett have been stressing out all morning since learning another service person was coming by to fix the problem. We didn't know about this peoblem until we were told last night and so they were long asleep before an appointment was scheduled. Emmett is in a horrible mood because he doesn't understand why it takes so many tries to get something done correctly. He's such a logical person and…

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This happens every single night, without fail

Every single night, no matter what's going on or how bad of a day I've had, I can always count on Gavin's bedtime routine. ☺ Part of that routine, is asking me if he can show me his city. By that he means he wants me to look at the progress he's made on one of his tablet games that day. I try to always oblige him because showing me his progress in the game is the equivalent of scoring a winning goal for him. He's really proud of himself and it only feels right to let him feel a sense of pride. Truthfully though, I don't know the difference between what his city looked like yesterday vs today. It always looks the same to me but he's happy so…

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I was so frustrated I could scream (this is a very sensitive topic)

It's been an insanely frustrating day. Very little went as planned. Some went okay and a small amount has been an absolute disaster. The internet was a nightmare because two rounds of brand new equipment was faulty. I now have to wait until Wednesday to get a tech out here to look over the equipment that still isn't working. I love Spectrum's approach to broadband but I very much dislike the company. The appointments themselves went alright for the most part. Turns out Gavin did have an appointment as well. Not a huge deal since all of us were there already. That being said, Gavin is my main source of aggravation today. I know it's not his fault but goddammit, he can be frustrating. I've been trying to think of…

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I’m a little worried about Gavin this morning

Gavin has been incognito all morning and we aren't sure why. The only time we've seen him today was at lunch. He seemed sorta slower and more out of it than normal. Something else we noticed right away is that Gavin was wearing shorts. What does wearing shorts matter, you may ask? Well simply put, Gavin never and I mean never wears shorts. I can't even remember the last time I saw him in shorts. Okay, he wore a bathing suit at his grandparents last night while the boys played in the sprinkler. It's so unusual for Gavin to wear shorts that the very first time he experienced the ocean, he wore jeans. Anyway, Gavin says he's okay but I think we're going to want to keep a closer eye…

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