Read more about the article Praying the @clevelandclinic can help my wife
Cleveland Clinic / Lizze / Migraines / My thoughts / Neurological Center for Pain

Praying the @clevelandclinic can help my wife

Lizze and I made it to the Cleveland Clinic's Neurological Center for Pain. We actually made it 10 minutes early and considering traffic, that's a miracle. Lizze and I have set a goal to find at least some answers but also some relief from her constant, crippling pain. We need to get the medication situation straightened out immediately. Wish us luck but also know that she's in good hands with the Cleveland Clinic.. ☺

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January 3, 2019
Read more about the article Helplessly watching as my wife suffers is absolutely awful
Cleveland Clinic / Lizze / Migraines / My thoughts / Neurological Center for Pain

Helplessly watching as my wife suffers is absolutely awful

Lizze is in rough shape today. This migraine is relentless and you can see that it's taking its toll on her. She's absolutely miserable and there's nothing I can do to help her. It's so bad she can't be touched. There's not anything I can do but get her to her appointment today. The pain makes her sick and unable to eat or sleep. I'm hoping that we can find something that will help her get some relief. We have an hour plus drive to Cleveland today and she's not in a place to endure that. Unfortunately, it's the only option and it's important that we get there. I fucking hate that I can't help her with this. No one should have to live in this much pain and if…

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January 3, 2019
Read more about the article How the @clevelandclinic gave us hope
Cleveland Clinic / Lizze / Migraines / My thoughts / Neurological Center for Pain

How the @clevelandclinic gave us hope

It's been a couple of days and I've still not gotten around to updating you on Lizze's appointment at the Cleveland Clinic. As a quick reminder, she was at the Neurological Center for Pain, seeking help for her migraines. Lizze went into this appointment with very, very low expectations because for the most part, she's without hope that she will ever live a day without pain. I get where she's coming from and it breaks my heart to see her go through this. That said, I'm carrying the touch in regards to hope because I cannot accept a reality in which she can't find relief from her migraine. She deserves to exist without pain and I will keep working towards that end. We arrived a bit early but only had…

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October 21, 2018
Read more about the article At the @clevelandclinic Neurological Center for Pain hoping for a miracle
Cleveland Clinic / Lizze / Migraines / My thoughts / Neurological Center for Pain

At the @clevelandclinic Neurological Center for Pain hoping for a miracle

Lizze and I have safely arrived at the Cleveland Clinic's, Neurological Center for Pain. She really scared that they won't be able to help her. She hasn't been in - nor does she want to go on pain medication. She want the pain to stop, not just be masked. We are hoping that she can try a medication called Aimovig. It came out earlier this year and is the very first medication designed specifically for migraines. It's not a medication for something else that used offlable to treat migraines. It's supposed to be a big deal and we're hoping she can try it. She's had the same migraine for close to 7 years now. It never goes away and it only slightly lessens or gets worse. She's desperate for relief…

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October 18, 2018
Read more about the article My wife is visiting the @clevelandclinic today, desperate for relief from her constant migraines
Cleveland Clinic / Lizze / Migraines / My thoughts / Neurology

My wife is visiting the @clevelandclinic today, desperate for relief from her constant migraines

It's a huge day for Lizze. She's finally getting in to see her new headache specialist at the Cleveland Clinic. Lizze has had the same migraine for roughly the last 6 plus years and it never stops or goes away. She's never responded to medication and they've tried everything, including Botox injections in her forehead, face and back of the neck. It's been years since there's been any new options for the her to try but there are currently new treatments that hold promise for relief. Part of the issue that makes Lizze's case so complicated is that she has Ehlers-Danlos and mild autonomic disfunction. Ehlers-Danlos is a connective tissue disorder and can also effect the cardiovascular system as well. It's believed that her migraines may be related to a…

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October 18, 2018
Read more about the article Hello Pain Management at the @ClevelandClinic
Cleveland Clinic / Fibromyalgia / Lizze / Migraines / My thoughts / Pain Management

Hello Pain Management at the @ClevelandClinic

After a quick lunch, we've made our way to Pain Management. It was about a 35 minute drive from the main campus. We realized that we been to this location before. It was many years ago when Gavin was little. This is where he saw his first Cleveland Clinic Neurologist for his movement disorder. It's been a long time but it brought back some memories of the very early days in Gavin's health journey. Anyway, we're actually a bit early but she's checked in and filling out the questionnaire. They said she might be able to get in early. ☺ Lizze and I have come up with a list of questions, so we can maximize the time we have here today. I saw someone asked in the comments on the…

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September 19, 2018
Read more about the article There’s so much riding on today
Cleveland Clinic / Fibromyalgia / Lizze / Migraines / My thoughts / Pain Management

There’s so much riding on today

Thankfully, Emmett's in a good mood this morning because we finally understand why he's been so frustrated with school and no longer wants to go. Hopefully, we'll get some answers this morning and can put his fears to rest. I'll explain more when I can. He's not being bullied or anything like that. This has to do with what appears to be a classroom policy. After that, the biggest thing we have going today is one of Lizze's appointments at the Cleveland Clinic. One of her appointments today is very important, while the other is a routine follow-up. Lizze is going into the pain management program at the Cleveland Clinic. We're heading to the amazing @ClevelandClinic today in order to find relief for my wife, who's living with chronic pain.…

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September 19, 2018
Read more about the article Today almost didn’t happen
Cleveland Clinic / Fibromyalgia / Lizze / Migraines / My thoughts

Today almost didn’t happen

We have an insanely busy day ahead of us. It will begin by meeting with Emmett's teachers because he came home today and requested that we pull him from the school. I can't go into what's going on until I meet with the teachers and gain more insight. Lizze and I will leave from the school and head to the Cleveland Clinic, where we will spend the rest of the day. Lizze has a string of appointments and they begin first thing and won't finish until dinner time. It's going to be an exceptionally long day and unfortunately, these appointments aren't all in the same location which means there's going to be a good deal of driving. Things are a bit tight in the financial department at moment and trips…

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September 19, 2018