Read more about the article We meet again Akron Children’s

We meet again Akron Children’s

My day is off to a great start. I slept through the night and woke up feeling energized. I bought donuts last night to surprise the kids this morning. I have a relatively busy morning in front of me but I know I totally got this. Elliott got off to school without a problem, although he insisted on wearing shorts again. That's a sensory thing and something I'll talk about another time because it's becoming a problem this time of year. At the moment, Emmett and I are in the waiting room at Akron Children's Hospital. He's got his PT evaluation in a few minutes and he's really excited. He loved PT when he was younger and he once again needs some extra help to navitage the world safely. ENHAN…


Made a trip to Akron Children’s Hospital today

Haven't done one of these is forever. Elliott and Emmett both had well checks today at Akron Children's Hospital. This was basically playing a bit of catchup as a result of COVID. Elliott needed a physical for school this year and Emmett just needed a physical because it was time for him to have a physical. They did great and both boys needed vaccines. Emmett needed both HPV and flu, while Elliott just needed his flu shot. Emmett claimed that the HPV shot hurts worse than the flu shot. This was his second HPV dose, so he has experienced it before. I was calling bullshit on that claim so we put it to the test. The nurse didn't tell him which shot was which and Emmett was supposed to tell…


A trip to the emergency room and 2 #covid shots later

It's been a crazy morning but we all survived. Emmett went to bed complaining about pain behind his ear. He had a really hard time sleeping and kept me up for most of the night. When we woke up this morning, he was in tears because it hurt so bad. I could barely keep my eyes open but the kids had to be at Akron Children's Hospital before 10am for their second COVID shot. That was an absolute priority but I was concerned because I didn't know what was going on with Emmett. Ultimately, I decided to drag Elliott out of bed early, which he wasn't happy about, and head to the ER at Akron Children's. My thought was that I'm only one person and I needed to be in…


My kids were #vaccinated at @AkronChildrens Hospital today

One of the decisions I had to make recently was whether or not to get Elliott and Emmett vaccinated for COVID. That took about 3 seconds to figure out what the right thing to do was. Of course, the boys will get vaccinated ASAP. Do I have questions about the vaccines in regards to my kids? Sure I do and that's okay. There's nothing wrong with having questions about something like this. That being said, I seek out information from friends who are quite literally experts in the field. I don't think people should be criticized for having questions or concerns but as adults we have a responsibility get our information from expert sources and not social media or right wing media sources. We owe our kids better than that…


Round 3 of blood work for Gavin

It's been a long day but a pretty good one. I didn't write yesterday cause I was not really in a place where I felt like writing. I spent the time connecting with other parents instead and that was really cool. Yesterday, I had to take Gavin for another round of blood work, this time focusing on his liver. I hate doing this because it puts us in contact with other people but it was a necessary evil. Gavin's levels have been off and we have to keep following up until we figure it out. I needed to get this done ASAP because the car goes into the bodyshop this weekend and I'll be car-less for a few weeks. Gavin has an appointment with gastro coming up and we need…

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Gavin’s labs came back and it’s mostly good news

Let me start out by stating that I'm absolutely overwhelmed. The last few weeks have been incredibly challenging for me. The last 2 weeks in particular, have been much worse because I've been so worried about Gavin's health. I have an update for you but not really an explanation because I don't know that we really have one at this time. After an enormous amount of frustration, glitches with MyChart, and long phone conversations with the always amazing people at Akron Children's Hospital, I was finally able to get the results from his recent labs. Gavin spent his hurry up and wait time working in his 5D art stuff. ☺ The headache it took to make that happen is due in part to unusual circumstances, HIPPA and technical problems. That…


Quick Update On Gavin’s Condition

It's been a long stressful day but when is it not, right? I wanted to drop a quick update on Gavin's situation because I have some news. After a many phone calls and several attempted workarounds, Gavin's new lab orders were faxed to Akron Children's Hospital. By the time we got there, it was pushing 1pm. Gavin did great, as usual and we're currently waiting in the results. It's frustrating because I hate waiting, especially considering the stakes but hopefully, by the time you read this, we'll have some answers. Not much else to say at this point because today has been consumed with getting this addressed. I told you it would be quick.


We had to break quarantine for the first time in 173 days

I'm absolutely exhausted but I wanted to share a quick update and then go into more detail later on if need be. We wore our KN95 masks and broke quarantine today for the first time in 173 days. That means we came into direct, sustained contact with other people for the first time since this all began. The reason for this was vaccines. Elliott and Emmett each needed a vaccine. Elliott needed his MMR booster and Emmett started his HPV. Elliott had his MMR delayed for health reasons when he was little and he needed to get caught up. Gavin needed labwork and all four of us needed flu shots. We visited Akron Children's Hospital for the boys vaccines and Rite Aid for our flu shots. I wanted to make…