Parents play a huge role in their children’s education

Lizze and I have teacher conferences scheduled for tonight. Unfortunately, we have some concerns about Elliott's teachers and want to hear their side of things. Elliott has been struggling with his math makeup work and according to him, he's asked for help a few times this week but his teacher won't help him. This isn't our first rodeo so we don't assume that Elliott's accurately perceiving what's taking place inside the classroom. At the same time we aren't assuming that Elliott's wrong either. We know enough to know that teachers aren't perfect and that things happen that we wouldn't think would happen. I've not known Elliott's teachers before this school year and so I have no history with them. They're newer and it's always a good idea to make every…

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I’ve been sick

For starters, I've been sick since last night. I'm not sick sick but rather I ate something that made me feel like I was going to die. Lizze was kind enough to take over so I could sleep for most of the day. I'm not feeling 100% but I was able to pick the kids up for school and manage the rest of the day. The boys have had a pretty decent day and I'm so proud of them for doing so well today. I'm also really happy to say that Gavin's doing better. He's been feeling so much better than he has been the last few nights. I promise I'll write more tomorrow and get you all caught up of everything that's going on. I need a chance to…

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#Autism Parents: Too often we forget to do this

This falls into the category of unsolicited advice and I don't usually like to provide that but this is too important not to. Yesterday was absolutely Hellacious. Lizze and I are really feeling the stress and there isn't any fix to it. Being an Autism parent pretty much guarantees that your life is going to be more challenging than most. It honestly doesn't take long before life begins to take its toll. Something I've learned along the way is that no matter how bad things get, never neglect what matters most. In my case, the kids are never neglected but there are two members of our family who sometimes are. Always, always make your marriage a priority (assuming you're married). Lizze and I sometimes get lost in our lives and…

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My heart breaks for Gavin tonight

For the second night in a row, Gavin is going to bed sick to his stomach. I'm not sure what's going on but it was so bad that he went to bed before 6:00 PM. I don't think he's actually sick sick but it might be autonomic in nature. These could be mini to moderate crises. They aren't anything that will send him to the hospital but it's enough to knock him off his feet. When these things come around, the absolute best thing he can do is go to sleep. Going to sleep helps his body to stabilize and when he wakes up, he's usually better. We haven't seen anything like this in awhile and I could totally be wrong but the symptoms do fit. If he were to…

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We survived the day and have the pictures to prove it

Today's appointments have me completely and utterly exhausted. Everything is okay with the kids and it does appear that Elliott is dealing with a fever disorder, pending some extensive labs. I'll fill you in on the details but while everything turned out okay, but the there were some problems. For now, here are some pictures from our day.. [foogallery id="67370"]

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Focusing on the positive

Gavin's appointment with Dr. Reynolds went as good as it really could have. He's doing about the same and so there aren't any changes at this point. We're going to monitor his labs once a week from this point forward and try and keep everything the same until we get into Hematology. I don't know. Perhaps this is part of what's eating me alive? I'm so worried about Gavin and it's exhausting. I need to cope a little better because things aren't likely to get better, The reality is that things will only get worse as time goes by. I have to be able to deal with this in a healthier way. For right now, I'm focusing on the fact that Gavin is doing okay. I'm grateful for that and…

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Is this what a panic attack feels like?

I'm so fucking stressed out today and I'm not sure why. We didn't get off to a good start this morning but there are plenty of mornings like that and I don't feel like this. I'm completely frazzled and don't even want anyone talking to me. It feels like everyone around me is going in slow motion and I'm in a big hurry. This is all on me but I don't know what triggered this. I've only had a few actually anxiety attacks in my life and perhaps this is one of those. Absolutely everything feels insurmountable and there's this overwhelming sense of impending doom or that I forgot something extremely important. I feel like I'm going crazy and my body is shaky. The reality is that I'm depressed, exhausted,…

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We were caught up in #Autism Hell this morning

The boys had a horrible morning. There are some days that as a parent, Autism kicks my ass up one side of the street and down the other. Today is one of those days. Elliott sorta worked through his struggle but Emmett was another story all together. Poor Emmett wouldn't wear a shirt and it took until after 8:30 AM to get him in the car. By that time, they both missed breakfast at school and that only compounded the issue. I think a large part this mornings nightmare was the result of anxiety related to getting his flu short this afternoon. I know that was the case for Elliott as well. Emmett spent all his resources trying to cope with his anxiety surrounding his pending flu short, that he…

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