Ehlers Danlos Archives - Page 3 of 101 -

Tag: Ehlers Danlos

Starting the day off with good news

I wanted to share a bit of very positive news this morning. I know it seems like everything is always negative here but it really isn’t. The idea of being transparent means that you get a glimpse into the reality in which I live. The reality is, there are major challenges in my life and …

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How @ProbGenetic is helping us take a MAJOR step forward in the search for answers

If you’ve been following our story for a while, you likely know that its been on a very long, very challenging journey with Gavin for most of his life. If you’re new here, I’ll give you a bit of backstory, to help put the significance of what I’m about to share with you, into the …

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I’m seriously stressing out right now

Many of you know, we just recently got a new car. It’s a 2016 Buick Regal Premium II Turbo. It is a significant investment and the first one I had to make as a single parent. I just made my third payment this month and while it’s a challenge, it’s something I’m very proud of. …

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We finally have a plan to help my youngest

We finally have a workable plan, at least in theory, to help Emmett get back to school. Again, this is a nonperfect approach to a very challenging and fluid situation, but it’s a plan nonetheless. Emmett is dealing with some very serious emotional challenges right now and it’s interfering with every aspect of his life, …

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Here’s what’s up with my @GoFundMe and how you can help

I shared this information on the GoFundMe page itself but I wanted to share it here as well. Additionally, I’ve provided a breakdown of everything as well. Please do not feel obligated to contribute, but if you can, and want to, please follow the link to and do so. Visit the GoFundMe. Recently, my kids …

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I’m really struggling with my youngest

Just a quick update on Emmett. I haven’t heard anything from the school as to what our options are. I did talk to his therapist tonight and our goal is to get him back into the classroom but we also recognize that this will likely be a process. Right now the plan is at home …

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I’m choosing to focus on the positive tonight but it’s not easy

I wish I was able to be a bit more uplifting right now but the reality is that things are very difficult at the moment. I have my hands full with the kids and all they’re currently struggling with. I’m spread so thin you can pretty much see right through me. As tough as things …

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There’s no way to prepare for your child being in crisis

Emmett didn’t go to school today and I took him with me walking this morning. I’m really struggling with this but I still need to take care of myself. It’s not a perfect solution but in the absence of any workable options, I’m doing the best I can. All I will say is that what …

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