The boys won’t be home for a little while and after sleeping in, I’m going to go walking. Lizze is in a great deal of pain today, so I’ll be walking alone. Before we went to Chipotle last night, we also took Gavin to the garden center. He’s been having a lot of joint related …
Tag: Ehlers Danlos
Jun 07 2018
Things have gotten so much more complicated
Before I go into anything, I want to begin by saying that Gavin’s echocardiagram looks good. Everything appears to be normal and that’s really, really good news. Gavin did really well with the testing and was very cooperative. He even tried to carry on conversations with the staff. It was sorta awkward and unrelated to …
Mar 02 2017
General Update: The Good News and The Bad News
I’ve been spread pretty thin this week and I haven’t written much at all. I’m trying to refocus a bit and get back into the habit but frankly, it seems overwhelming sometimes. I’ll do my best to get back on track. There are a few things that I’d like to update you on. First and …