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Tag: Ehlers Danlos

Holding my own and not giving up

Today has not gone as planned. Elliott didn’t sleep well at all last night and was beyind exhausted and not feeling well this morning. Emmett was up on and off with nightmares as well. That means that I got a really shitty night’s sleep myself. Elliott was unable to make it to school this morning …

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I feel helpless and powerless because I can’t help my kids with #Autism

We had a frustrating therapy session tonight. The boys are very frustrated about certain things that I can’t help them with. They will talk to me about what’s bothing them because A) they trust me, and B) because I’m there in the moment when they need to talk. Outside of those moments, they do not …

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I feel like my family did okay today

As a family, we had a pretty decent day. There was no real excitement and that’s the kind of day I like to have whenever possible. Gavin had his IVIG Infusion, while I got some work done and the E’s played the Xbox together. There was no fighting the entire day and I can’t remember …

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How my #Autistic son overcame his anxiety today

We had a really busy day today and I’m quite tired. We had our share of ups and downs I wanted to point out something that happened, as well as how I handled it. As I mentioned the other day, we were celebrating Gavin’s 20th birthday today. Most of my family, including myself and the …

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We had a good day

We had a pretty good day. The kids arrived home from their mom and grandparents house around noon, and we had a quiet afternoon. Gavin decided he wanted pizza and chicken for his birthday dinner. We’re not actually celebrating his birthday until Sunday but we always do a special dinner on the actual day. We …

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A Birthday We Almost Didn’t Get To Celebrate

Today is a big day in The Autism Dad household because Gavin turns 20 years old. This would be a milestone birthday on its own but for us, it’s more than that. For the last decade or so, Gavin’s health has become very fragile. I recently wrote all about that and you can click here …

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I’m struggling to find balance

The boys are gone and I have a really quiet evening. I took my nap and finished season one of Guardians of The Glades before getting some work done. I’m still finishing up the next podcast episode and I’m not sure when it will release. Probably next week. I really want to get a few …

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I have some time to myself

The boys are gone for the night and I can just sorta exhale for a bit. I absolutely love my kids but it’s so hard to see them hurting all the time. It eats away at me and it’s tough to deal with. I just finished a 3.5 mile walk with my Mom and I …

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