#Autism Parenting: Whatever doesn’t kill you….. 

Whatever doesn’t kill you, only makes you stronger. If that’s true, I should be in really good shape after the morning I’ve had. 

My God… You would think that we were trying to cut his feet off, when all we were trying to do was help him get something on them that would allow him to go to school. 

Every time it feels like we’ve made progress, something always comes along and yanks the rug out from underneath our feet. 

The reality is, raising kids on the Autism Spectrum is like living in Ohio and complaining about the weather. If we just wait ten minutes, the weather will change. 



In many ways, that’s true in regards to parenting a child on the spectrum but not always in the sense that the change is a positive thing. 

What I mean by that is this. Even if we manage to get Emmett comfortable in his shoes and socks, it’s only a matter of time before he will no longer be able to wear them. 

Over the years, I bought countless shoes, slippers, crocs, socks and even flip-flops for Emmett. Everything seems to work at least once or twice but after a short amount of time, something changes and we’re back to square one. 

Our go to for school has been flip-flops because oddly enough, he’s almost always okay with those, regardless of the temperature. 

Unfortunately, the winds of change are upon us once again because even flip-flops are becoming an issue. 

We did finally get him out the door wearing his flip-flops but only by the grace of God and I mean we barely pulled this off. I fear we are going to be facing even greater challenge in the near future because if he can no longer tolerate his flip-flops, we have nothing to fall back on.. 

Take a second and answer today’s Autism Parenting poll

Does your child with Autism have issues sleeping?


U-Lace No-Tie Sneaker Laces

Facebook Profile photo

About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  

20
Leave a Reply (Login to the site or comment as a guest)

Please Login to comment
avatar
6 Comment threads
14 Thread replies
2 Followers
 
Most reacted comment
Hottest comment thread
5 Comment authors
Rob GorskiJimmy Rockkimmy gebhardtbwirenMary Deigan Recent comment authors

This site uses Akismet to reduce spam. Learn how your comment data is processed.

  Subscribe  
newest oldest most voted
Notify of
kimmy gebhardt
Guest
kimmy gebhardt

Is it just me or does this issue seem to be getting worse? Maybe you’re just writing about it more often? I don’t recall you mentioning it as much last year. I watched the video and it’s awful and my heart goes out to him. I guess I’m just wondering if there is something else that is exacerbation the situation.

Mary Deigan
Guest

I feel your pain – we have massive issues with shoes and socks. Ethan won’t wear socks at all but luckily his school are OK about that. Now he has grown out of the only pair of shoes he feels comfortable in, we have been trying different pairs but there always seems to be a problem. Now we are trying buying second hand shoes that have been worn in and are softer. Luckily he has a 1:1 TA at school, as she often has to carry a pair of plimsoles with her if he needs to change into them!

adriannecollee
Member
adriannecollee

Is it just me or does this issue seem to be getting worse? Maybe you’re just writing about it more often? I don’t recall you mentioning it as much last year. I watched the video and it’s awful and my heart goes out to him. I guess I’m just wondering if there is something else that is exacerbation the situation.

paulinabisson5
Member

Kim,

It’s like this most every single day. There’s nothing that’s really exacerbating it. This is why we struggle with this so much.

kimmy gebhardt
Guest
kimmy gebhardt

But has it always been this bad? I’m not doubting anything you say, I just don’t remember this many posts about it before. I’m mostly wondering if it’s getting worse as he gets older, which is why I thought something may be triggering it, for lack of a better word.

paulinabisson5
Member

I didn’t think you were doubting it. With Emmett it could be anything. It’s always been this bad but when he was younger, the battles were less intense and it wasn’t as big of a problem because he was home all the time. You would be right in wondering if it’s getting worse as he gets older. I don’t know if the sensory issues themselves are getting worse or if he’s just under more stress in general, diminishing the resources he has to cope with those sensory issues… Does that make sense? The reason I wanted to share the video… Read more »

adriannecollee
Member
adriannecollee

My other reply is awaiting moderation (for some reason, that happens when I post from my phone) so I’m going to ask this here: I could see that Emmett really did want to go to the movies. What would happen if you said “If you want to see the movie, you have to wear your shoes. If you can’t do that, it’s okay, but you will have to stay home with Mom/Dad”. I know it would still be a struggle, but I’m wondering if removing any choice other than A or B would make a difference. I’m not trying to… Read more »

paulinabisson5
Member

I fixed that. I have no idea unless someone reported it. I replied to you previous comment as well. ☺

Jimmy Rock
Guest
Jimmy Rock

I’ll start by saying I didn’t watch the video. I understand why you posted it but I don’t need or want to see it. I’m not saying that you’re haven’t been doing this, but I really think you have to think outside — far outside — the box on this one. It’s clear that what you’re doing isn’t working — not through any fault of your own (it’s not a “blame” situation) — just objectively speaking, things are simply not working as they’re going on now. It’s brutal on the boy, and awful for you as parents. How about having… Read more »

Mary Deigan
Guest

I feel your pain – we have massive issues with shoes and socks. Ethan won’t wear socks at all but luckily his school are OK about that. Now he has grown out of the only pair of shoes he feels comfortable in, we have been trying different pairs but there always seems to be a problem. Now we are trying buying second hand shoes that have been worn in and are softer. Luckily he has a 1:1 TA at school, as she often has to carry a pair of plimsoles with her if he needs to change into them!

paulinabisson5
Member

While I’m sorry for what your son goes through with his sensory issues, there’s some level of comfort in knowing that we aren’t alone. I hope you find a sustainable solution and if you do, please pass it along cause I’m pretty sure we’re gonna need it to. Lol

Very nice to meet you…

BeckyW
Member
BeckyW

This does seem like an issue that needs more therapy of whatever kind. What I get from the blog posts is a sense of fighting something that is dark and amorphous and constantly changes. (Is it one of the Marvel super villains? But I digress.) But my sense is also that your son is in agony, while you are also in emotional agony. (I did NOT watch the video. I just can’t.) Personally, as a mother of a (high-functioning) autistic son, who is also HFA, I’m guessing that stress and/or lack of sleep heightens his sensitivity, poor kid. I know… Read more »

mathewpenny648
Member
mathewpenny648

This does seem like an issue that needs more therapy of whatever kind. What I get from the blog posts is a sense of fighting something that is dark and amorphous and constantly changes. (Is it one of the Marvel super villains? But I digress.) But my sense is also that your son is in agony, while you are also in emotional agony. (I did NOT watch the video. I just can’t.) Personally, as a mother of a (high-functioning) autistic son, who is also HFA, I’m guessing that stress and/or lack of sleep heightens his sensitivity, poor kid. I know… Read more »