Read more about the article Emmett’s been in a lot of pain lately
Akron Children's Hospital / Autism / Emmett John / My thoughts / Physical Therapy / Sensory

Emmett’s been in a lot of pain lately

Emmett’s been having a lot of back pain recently. He’s been to the doctor and it appeared to be muscular in nature so he was referred to physical therapy. The appointment was scheduled but we had a month or so to wait and it felt like forever. Yesterday, Emmett had his evaluation and they believe it’s muscular as well. He did great and has exercises to do each day. I’ll also now be taking him to PT every Friday morning at 7am through July. I’m not super excited about that but we do what we must and he definitely needs the help. Part of the problem is that Emmett has grown so rapidly recently. He went from this tiny kid who hadn’t grown forever to this giant teenager, seemingly overnight.…

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March 9, 2023
Read more about the article I’m in a pretty dark place and I needed this reminder today
My thoughts

I’m in a pretty dark place and I needed this reminder today

I’m in a dark place right now and I’m trying so hard to work through it. I’m reminded daily by those closest to me, how far I’ve come, and how far my kids have come but I just can’t always see it for myself. I need to focus on it though because it’s keeping me moving forward on days I don’t even want to get out of bed. I found this picture while scrolling through my photos today. It’s heartbreaking when you know the story behind it and while it was happening, people always told me to force him sleep in his own bed but I just couldn’t. For the first couple of years after his mom left, the only way he would sleep at night is if he wrapped…

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March 1, 2023
Read more about the article Learning to Self-Advocate
Gavin / My thoughts

Learning to Self-Advocate

It’s been a really long day and I’m calling it a night but before I do, I want to shine a spotlight on Gavin for a few minutes. Gavin had a big day today, and I want to recognize some significant accomplishments. I will not go into much detail here because I want to record a podcast episode about this later. Gavin had two appointments today. The first was at the Cleveland Clinic. Gavin’s been dealing with depression, and we were meeting with his doctor to discuss the possibility of starting him on an anti-depressant. I’ve never been a massive fan of medication, despite all the meds Gavin’s been on. I’ve learned over the years that sometimes medication is a necessity to improve quality of life. The proper medication used…

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January 27, 2023
Emmett John / Gavin / My thoughts

How a Dump Cake Brought 2 Brothers Together

It was a really fun day. It was super busy and I had multiple meetings but it was a good day. Things are definitely looking up for us here in The Autism Dad household and I’m so grateful for that. The boys got off to school without a problem and in between meetings, Gavin and I spoke about his new found love of baking. He informed me the other day that he finds baking to be relaxing. As he’s been stressed out a bit more lately with all the transitional changes in his life, he’s been baking a lot more. https://www.facebook.com/100050605414132/posts/pfbid0jvxgB5uzPSv5pxkdsARGhvr4g15UCuKWsNcganyLXbKwkWdU7AM6tzpsD1X1v416l/?mibextid=cr9u03 The other day, someone sent me a recipe for Gavin to try and after discussing it, Gavin wanted to give it a go. He and I went to Giant…

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January 6, 2023
Read more about the article Quick Update
My thoughts / Quick Update

Quick Update

Just a quick piece of house keeping. As some of you know, I created a reddit sub for autism parenting many years ago. It was a support group for parents to share their experiences and learn from each other. The goal was for parents and autistic adults to come together and learn from each other. I'm not a huge fan of the reddit platform and I moved the group to Facebook (link below). Those who stayed behind requested that the reddit group remain open. I've turned it over to a 3rd party and they will run it as they see fit. Effective immediately, I've severed all ties, deleted my account, and I'm no longer associated in any way, shape, or form, with this group, or any other group on reddit.…

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December 26, 2022
Read more about the article Am I the only parent who struggled with this?
Gavin / Independent Living / My thoughts

Am I the only parent who struggled with this?

I’ve been meaning to talk about this for a while because I think we should be open and honest about this. Here we go. I’ve been very focused on Gavin transitioning into adulthood. He’s almost 23 years old, and this has been a long time coming. It’s also been met with several delays, mainly due to COVID. Anyway, one of the things I struggled with was admitting that Gavin moving out was in everyone’s best interests. It’s in Gavin’s best interest, but it’s best for the rest of us as well. This is where I’ve struggled emotionally with this whole thing. Gavin is among the most amazing humans I’ve ever known, but he’s not always easy to coexist with. His behaviors can be overwhelming and very frustrating for me as…

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December 18, 2022
Read more about the article The Journey to Independence: Progress does not require perfection
Gavin / My thoughts

The Journey to Independence: Progress does not require perfection

If you’ve been following our journey, you know that Gavin has come such a long way. He’s doing so well compared to where he was. However, I think it’s important also to state that improvement doesn’t mean perfection. There are still struggles, and they can be challenging to manage. Today was one of those days where I’m reminded of this. Gavin told me he was going to shave this afternoon. It’s hugely positive that he sometimes recognizes and prompts himself to do this without reminders. I’m proud of this little victory, and I told him that. He ate lunch and then went to the bathroom to shave. Gavin shaves with an electric/rechargeable razor. He gets about 80% of the job done independently but still needs help to get what he…

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December 15, 2022