Blog - Page 298 of 1612

Exhausted, stressed out, worried and overwhelmed

Gavin's feeling better this morning and the boys got off to school without much trouble. Lizze is having a rough morning because she had a really difficult day yesterday and didn't sleep well last night. I'm pleased to say she's currently napping on the couch for a little while. I hate the idea of waking her up but we have to get ready to take Ruby to the vet, and she wants to go. Hopefully Ruby's appointment will go well and we'll be home before we know it. I'm still waiting on Gavin's lab results as well as the delivery of his Clozapine prescription. In the spirit of honesty, I'm very preoccupied with worry about the results of Gavin's labs from yesterday. There's a really good chance we're going to…

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February 9, 2018

Ruby goes into the vet today

We're about 110% sure that Ruby has worms. Rather than deal with it ourselves with OTC stuff from the pet store, we're just taking her in. She needs to be seen and get her shots for the year, as well as be checked out so she can get fixed next month. She just came out of being in heat and we have to wait at least 6 weeks before having her fixed. I'm really hoping she does well with the vet because tiny dogs can be difficult at times. Aside from the worms, she's doing fantastic. She's too cute for her own good but there are worse things in the world I suppose.. ☺

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February 9, 2018

Gavin / My thoughts

Gavin went to bed not feeling well and I’m worried

Gavin had a really stressful day yesterday. He did great with having to get more bloodwork done but it took a lot out of him. As the day went on, it was clear that he was at the end of his rope. The boys were being annoying, as little brothers will be, but Gavin didn't have as much patience as he usually does. After dinner, he ended up with really bad reflux and it took quite a bit of work to help him feel better. He went to bed tonight still not feeling 100%. I don't know if the reflux was stress related or if it was something he ate. Maybe it's a little bit of both or something else all together. I'm worried about him and there's nothing I…

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February 9, 2018

Clozapine / Gavin / My thoughts

My days don’t get much harder than this

It's been the longest, most stressful day I've had in a long time. There are two main reasons for my current level of distress and both are related to Gavin but not his fault.

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February 8, 2018

Common Variable Immunodeficiency / Gavin / My thoughts / Thoughts and Prayers

The doctor called with heartbreaking news

I received a call today from Gavin's doctor. When I saw who it was, my stomach knotted up and my heart sank. They never call unless it's bad news. I was right. Apparently, Gavin's numbers are crashing again. I'm currently waiting for him to come out from having his labs drawn for the second time in three days. I didn't get all the numbers but they informed me that his Absolute Neutrophil count (ANC) dropped from 2.9 to 1.8 in less than a week. This is not a good thing and I wish I knew what was responsible for this but no one knows for sure what it is. The most likely culprit is the Clozapine but it's also possible it's part of his CVID (Common Variable Immunodeficiency) as well.…

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February 8, 2018

Inspirational Posts / My thoughts

#Autism Isn’t Anyone’s Fault

I remember the moment each one of my kids was diagnosed with Autism. It's permanently seared into my brain because these moments are among the most pivotal in my life. One of the things I remember most was how much guilt I felt as our Autism journey began. I felt like I had sentenced my kids to a life of misery because them having Autism was somehow my fault. That guilt ate me alive for a long time. Truth be told, there are still moments where that guilt pops back up, even after all these years. I wanted to take a minute and talk to the Autism parents of the world, especially those just starting this crazy, wonderful, confusing and overwhelming ride. Speaking from personal experience, and extensive contact with…

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February 8, 2018

Contributed

Are Sports An Option For Children With Autism?

This is a collaborative post and doesn't necessarily reflect the thoughts and opinions of this blog or its author. Life is tough for children with autism. There’s no way around it. Though there’s help out there, there’s still a lot to worry about when it comes to day to day living. This is the case during and after the school years. Whatever your kids try to do, they’re sure to come up against some barrier to make it harder for them. In a way, there’s no getting around that. There are going to be things a child with autism can’t do. That’s a fact. But, it’s possible we also put barriers in places they don’t need to be. And, by doing so, we take away some of the pleasures…

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February 7, 2018

My thoughts

I suppose it wouldn’t be the worst thing in the world

It's been an interesting and even pleasant evening. Tuesday night therapy went well for everyone and while the boys were a handful at bedtime, everyone's sleeping. Lizze went to a late night movie with her Mom and I ended up falling asleep one the couch before 10 PM. I slept clean through until Lizze got home a bit after midnight. She had a great time with her Mom and I had a really quiet evening alone, which is actually nice to have every once in a while.. ☺ There's a better than average chance that we're looking at a snowday this morning. The school had already been talking about this when I was picking the kids up yesterday afternoon. I suppose a snowday wouldnt be the worst thing in the…

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February 7, 2018